American Fibromyalgia Syndrome Association Inc logo

American Fibromyalgia Syndrome Association Inc

Public charity · Grantmaker Tucson, AZ EIN: 77-0355224 Website

The American Fibromyalgia Syndrome Association's (AFSA's) two missions are: (1) fund superior quality studies on fibromyalgia and (2) educate patients about this disease so that they can seek improved healthcare and achieve a better quality of life.

American Fibromyalgia Syndrome Association Inc at a glance

In short: American Fibromyalgia Syndrome Association Inc reported $153K in grants paid in 2025 (a total; its filing lists no individual grants). Source: 2025 IRS Form 990.

Grants paid (2025)
$152,707 — reported as a total on the IRS filing, without an itemized list
+289.3% vs 2024
Total assets
$873,074
-12.0% vs 2024
Revenue (2025)
$51,876
-62.9% vs 2024
Net investment income (2025)
$29,896
+17.3% vs 2024
Expenses (2025)
$170,625
+6.0% vs 2024
Latest 990 filing
Form 990, 2025 View filing

Data from IRS Form 990, 2025; updated September 2026.

Who American Fibromyalgia Syndrome Association Inc funds

How this funder distributes its grants

Grant Size Distribution

1 grant across all recorded years

1<$50K$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 1 grant of 1 (100%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

2states

Cities

BirminghamDecatur

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$100K$200K$300K1 grant2020 0 grants2021 0 grants2022 0 grants2023 1 grant2024 Total only2025

From 2020 to 2025, annual grant giving ranged from $39K (2024) to $264K (2020). In 2025 it reported $153K in grants paid, as a total without an itemized list.

Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
Foundation for Atlanta Veterans Education and Research Inc Decatur, GAFibromyalgia Research$39,230
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2025$873,074$51,876$170,625$152,707Total only$29,896
2024$991,823$139,716$160,961$39,2301$25,494
2023$1,011,543$34,799$5,488——$2,487
2022$978,928$57,608$8,446——$32
2021$929,766$60,145$10,138——$32
2020$879,759$73,242$271,275$264,4591$716

"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.

About American Fibromyalgia Syndrome Association Inc

Based on IRS filings

American Fibromyalgia Syndrome Association Inc is a public charity focused on Medical Research, based in Tucson, AZ. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $873K in total assets. In 2025, it reported $153K in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $30K.

Focus Areas

Leadership & Key People

Officers and directors from IRS filings

American Fibromyalgia Syndrome Association Inc is led by Kristin Thorson, President on every filing since 2020; none of the 4 officers listed in 2025 report compensation.

Officers on the 2025 filing

  • Kristin Thorson

    President

    On filings since 2020

    40 hrs/week

    No compensation reported

  • Brent Songer

    Director

    On filings since 2022

    0.2 hrs/week

    No compensation reported

  • Steve Thorson

    Vice President & Secretary

    On filings since 2020

    15 hrs/week

    No compensation reported

  • Jennifer E Randle

    Chief Financial Officer

    On filings since 2022

    0.2 hrs/week

    No compensation reported

Former officers (1)
  • Former: Arne Oftedal CPA (2020–2021) — Chief Financial Officer

Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Frequently asked questions about American Fibromyalgia Syndrome Association Inc

How much does American Fibromyalgia Syndrome Association Inc give each year?

American Fibromyalgia Syndrome Association Inc reported $153K in grants paid in 2025 on its 2025 IRS Form 990, as a total without an itemized list of grants. In 2024 it gave $39K across 1 grant.

How large is American Fibromyalgia Syndrome Association Inc?

American Fibromyalgia Syndrome Association Inc reported $873K in total assets on its 2025 IRS Form 990. Its revenue that year was $52K.

What is American Fibromyalgia Syndrome Association Inc?

American Fibromyalgia Syndrome Association Inc is a public charity focused on Medical Research, based in Tucson, AZ. It holds $873K in total assets as of 2025.

Where does American Fibromyalgia Syndrome Association Inc operate?

American Fibromyalgia Syndrome Association Inc has awarded grants in Alabama, Georgia.

What is American Fibromyalgia Syndrome Association Inc's EIN?

American Fibromyalgia Syndrome Association Inc's EIN (Employer Identification Number) is 77-0355224. IRS Form 990 filing data is available on this page for 2020–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

Data update history

(4)

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2020 (received by the IRS February 2, 2021)
  2. Updated Form 990 for fiscal year 2024 (received by the IRS September 9, 2024)
  3. Updated Form 990 for fiscal year 2025 (received by the IRS November 12, 2025)
  4. IRS filings on file for fiscal years 2020–2025

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from American Fibromyalgia Syndrome Association Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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