American College of Medical Genetics and Genomics
The American College of Medical Genetics and Genomics (ACMG) provides education, resources and a voice for the medical genetics profession. To make genetic services available to and improve the health of the public, the ACMG promotes the development and implementation of methods to diagnose, treat and prevent genetic diseases.
American College of Medical Genetics and Genomics at a glance
- Total assets
- $4,378,505
- +9.3% vs 2023
- Revenue (2024)
- $9,094,612
- -22.2% vs 2023
- Net investment income (2024)
- $68,039
- +85.0% vs 2023
- Expenses (2024)
- $9,363,068
- -25.4% vs 2023
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who American College of Medical Genetics and Genomics funds
How this funder distributes its grants
Grant Size Distribution
2 grants across all recorded years
The most common grant size was under $50K: 2 grants of 2 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2021, annual grant giving ranged from $5K (2019) to $15K (2020). In 2021 it made 1 grant totaling $8K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| National Academy of Sciences Washington, DC | Support for GPH Roundtable | $7,500 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $4,378,505 | $9,094,612 | $9,363,068 | — | — | $68,039 |
| 2023 | $4,004,166 | $11,688,967 | $12,544,561 | — | — | $36,782 |
| 2022 | $4,135,215 | $9,565,031 | $12,314,576 | — | — | $-1,112,425 |
| 2021 | $5,251,363 | $10,964,294 | $10,238,781 | $7,500 | 1 | $149,529 |
| 2020 | $3,388,095 | $8,413,324 | $9,223,049 | $15,000 | 1 | $51,895 |
| 2019 | $5,277,106 | $11,176,041 | $10,866,369 | $5,000 | Total only | $107,932 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About American College of Medical Genetics and Genomics
Based on IRS filings
American College of Medical Genetics and Genomics is a public charity, based in Bethesda, MD. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $4.4M in total assets. Net investment income was $68K.
Leadership & Key People
Officers and directors from IRS filings
American College of Medical Genetics and Genomics is led by Melanie Wells, CEO since 2024 (on filings since 2019); none of the 24 officers listed in 2024 report compensation.
Officers on the 2024 filing
Melanie Wells
CEO
Chief Operating Officer → COO Then CEO, 2023
COO Then CEO → CEO, 2024
On filings since 2019
33.3 hrs/week
No compensation reported
Mira B. Irons
President
President Elect → President, 2024
On filings since 2023
3 hrs/week
No compensation reported
Kathleen A. Moran
Director of Communications
Senior Pr Director → Senior Director of Communications & Public Relations, 2023
Senior Director of Communications & Public Relations → Director of Communications, 2024
On filings since 2019
36 hrs/week
No compensation reported
Jane Dahlroth
Snr Director of Meetings & Exhibits
Senior Director Meetings & Exhibits → Snr Director of Meetings & Exhibits, 2024
On filings since 2020
37.5 hrs/week
No compensation reported
David A. Stevenson
Director
On filings since 2021
1 hr/week
No compensation reported
Hutton M. Kearney
Director
On filings since 2021
1 hr/week
No compensation reported
Shweta Dhar
Director
On filings since 2021
1 hr/week
No compensation reported
Robert Hufnagel
Director
On filings since 2023
1 hr/week
No compensation reported
Sarah T. South
Director
On filings since 2023
1 hr/week
No compensation reported
David T. Miller
Director
New on the 2024 filing
1 hr/week
No compensation reported
Douglas R. Stewart
Director
New on the 2024 filing
1 hr/week
No compensation reported
Joshua L. Deignan
Director
New on the 2024 filing
1 hr/week
No compensation reported
Karl Moeller
Director of Development
New on the 2024 filing
No compensation reported
Lauren J. Massingham
Director
New on the 2024 filing
1 hr/week
No compensation reported
Michelle McClure
Director of Public Policy
New on the 2024 filing
37.5 hrs/week
No compensation reported
William R. Wilcox
Director
New on the 2024 filing
1 hr/week
No compensation reported
Amy Brower
Associate Project Director & Nbs
Associate Project Director → Associate Project Director & Nbs, 2024
On filings since 2019
37.5 hrs/week
No compensation reported
Susan D. Klugman
Past President
President - Elect → President, 2023
President → Past President, 2024
On filings since 2019
3 hrs/week
No compensation reported
Chris Pitro
CFO
Chief Financial Officer → CFO, 2024
On filings since 2021
36 hrs/week
No compensation reported
Jerry Vockley
Treasurer
Director → Treasurer, 2023
On filings since 2021
3 hrs/week
No compensation reported
Fuki M. Hisama
Secretary
Director → Secretary, 2024
On filings since 2023
3 hrs/week
No compensation reported
Lynn D. Fleisher
General Counsel
Legal Counsel → General Counsel, 2024
On filings since 2023
36.5 hrs/week
No compensation reported
Alexis Morgan
COO
New on the 2024 filing
36 hrs/week
No compensation reported
Christa Lese Martin
President-Elect
New on the 2024 filing
3 hrs/week
No compensation reported
Former officers (23)
- Former: Cynthia M. Powell (2019–2023) — Director
- Former: Dietrich Matern (2019–2023) — Director
- Former: Heidi L. Rehm (2019–2023) — Director
- Former: Karen W. Gripp (2019–2023) — Director
- Former: Marc S. Williams (2019–2023) — Immediate Past President
- Former: Michael F. Murray (2019–2023) — Director
- Former: Robert D. Steiner (2019–2023) — Director
- Former: Kee Chan (2020–2023) — Scientific Strategy Manager
- Former: Bo Yuan (2022–2023) — Director
- Former: Nancy J. Mendelsohn (2023) — Acmgf Foundation President
- Former: Bruce R. Korf (2019–2022) — Acmgf Foundation President
- Former: Catherine W. Rehder (2019–2022) — Treasurer
- Former: Elaine Lyon (2019–2022) — Director
- Former: Laurie A. Demmer (2019–2022) — Vice President Clinical Genetics
- Former: Maximilian Muenke (2019–2022) — Chief Executive Officer
- Former: Anthony R. Gregg (2019–2021) — Past President
- Former: Amy E. Roberts (2019–2020) — Secretary
- Former: Katy C. Phelan (2019–2020) — Director
- Former: Louanne Hudgins (2019–2020) — Past-President
- Former: Michael S. Watson (2019–2020) — Former Executive Director
- Former: Tina M. Cowan (2019–2020) — Director
- Former: Bruce Bowdish (2019) — I.t Director
- Former: Christopher Pitro (2019) — Senior Finance Manager
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about American College of Medical Genetics and Genomics
How large is American College of Medical Genetics and Genomics?
American College of Medical Genetics and Genomics reported $4.4M in total assets on its 2024 IRS Form 990. Its revenue that year was $9.1M.
Where does American College of Medical Genetics and Genomics operate?
American College of Medical Genetics and Genomics has awarded grants in District of Columbia.
What is American College of Medical Genetics and Genomics's EIN?
American College of Medical Genetics and Genomics's EIN (Employer Identification Number) is 52-1774227. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS August 18, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS October 14, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 14, 2022)
- IRS filings on file for fiscal years 2020–2024
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