Alexion Access Foundation
Alexion Access Foundation is a private foundation focused on Health, based in New Haven, CT. IRS filing data is available from 2020 through 2025. In 2025, it awarded 6 grants totaling $131.9M.
Alexion Access Foundation at a glance
In short: Alexion Access Foundation gave $131.9M across 6 grants in 2025 (avg $22.0M), mostly in Connecticut. Source: 2025 IRS Form 990-PF.
- Annual giving (2025)
- $131,858,380
- -8.9% vs 2024
- Grants made (2025)
- 6
- +20.0% vs 2024
- Average grant
- $21,976,397
- -24.1% vs 2024
- Median grant
- $10,788,171
- Primary geography
- Connecticut (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990-PF, 2025 View filing
Data from IRS Form 990-PF, 2025; updated September 2026.
Who Alexion Access Foundation funds
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2025
The largest 2025 recipient was Vials of Strensiq Were Distributed ($57.5M). Together the top 6 received $131.9M.
Grant Size Distribution
25 grants across all recorded years
The most common grant size was $5M or more: 16 grants of 25 (64%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 6 itemized grants.
States
Cities
How Alexion Access Foundation gives
- Giving held roughly steady from 2022 to 2025 (+9%). Method
From the foundation's IRS Form 990-PF filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $41.3M (2020) to $144.8M (2024). In 2025 it made 6 grants totaling $131.9M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Vials of Strensiq Were Distributed New Haven, CT | Provide alexion product at no charge to eligible patients who are unable to afford the prescribed product | $57,544,344 |
| Vials of Ultomiris Were Distributed New Haven, CT | Provide alexion product at no charge to eligible patients who are unable to afford the prescribed product | $52,034,549 |
| Vials of Soliris Were Distributed T New Haven, CT | Provide alexion product at no charge to eligible patients who are unable to afford the prescribed product | $18,133,940 |
| Vials of Koselugo Were Distributed New Haven, CT | Provide alexion product at no charge to eligible patients who are unable to afford the prescribed product | $3,442,401 |
| Vials of Kanuma Were Distributed to New Haven, CT | Provide alexion product at no charge to eligible patients who are unable to afford the prescribed product | $581,970 |
| Vials of Voydeya Were Distributed T New Haven, CT | Provide alexion product at no charge to eligible patients who are unable to afford the prescribed product | $121,176 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Qualifying Distributions |
|---|---|---|---|---|---|---|
| 2025 | — | $131,858,380 | $131,864,595 | $131,858,380 | 6 | $131,864,595 |
| 2024 | — | $144,756,729 | $144,796,303 | $144,756,729 | 5 | $144,796,303 |
| 2023 | $101,099 | $110,240,463 | $110,271,931 | $110,240,463 | 5 | $110,271,931 |
| 2022 | $132,567 | $121,591,855 | $121,535,256 | $121,111,855 | 5 | $121,534,986 |
| 2021 | $195,433 | $55,917,914 | $55,799,594 | $55,687,914 | 4 | $55,799,594 |
| 2020 | $77,113 | $41,253,378 | $41,254,496 | $41,253,378 | 4 | — |
Leadership & Key People
Officers and directors from IRS filings
Alexion Access Foundation is led by Eric Rogers, President & Director on every filing since 2021; none of the 3 officers listed in 2025 report compensation.
Officers on the 2025 filing
Eric Rogers
President & Director
On filings since 2021
0.5 hrs/week
No compensation reported
Tamar Thompson
Director
On filings since 2021
0.5 hrs/week
No compensation reported
Claudia Schoenig-Diesing
Director
New on the 2025 filing
0.5 hrs/week
No compensation reported
Former officers (4)
- Former: Isabel Firmino (2021–2024) — Director
- Former: Christophe Hotermans (2020) — Director
- Former: Douglas Barry (2020) — Director
- Former: Rana Strellis (2020) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Alexion Access Foundation
How much does Alexion Access Foundation give each year?
Alexion Access Foundation gave $131.9M across 6 grants in 2025, according to its 2025 IRS Form 990-PF. In 2024 it gave $144.8M across 5 grants.
What is Alexion Access Foundation's typical grant size?
Alexion Access Foundation's median grant in 2025 was $10,788,171, and its average grant was $21,976,397, across 6 grants on its 2025 IRS Form 990-PF.
Where does Alexion Access Foundation give grants?
Alexion Access Foundation gives mostly in Connecticut: 100% of the grant dollars itemized on its 2025 IRS Form 990-PF went to recipients there. The most frequent recipient cities were New Haven, CT (6 grants).
Does Alexion Access Foundation give general operating support?
Not in 2025: none of the 6 grants with a stated purpose on Alexion Access Foundation's 2025 IRS Form 990-PF were described as general or operating support.
Who are Alexion Access Foundation's largest grantees?
Alexion Access Foundation's largest 2025 grantees include Vials of Strensiq Were Distributed ($57,544,344), Vials of Ultomiris Were Distributed ($52,034,549) and Vials of Soliris Were Distributed T ($18,133,940), according to its 2025 IRS Form 990-PF. Together they received 97% of its itemized 2025 grant dollars.
What is Alexion Access Foundation?
Alexion Access Foundation is a private foundation focused on Health, based in New Haven, CT.
What is Alexion Access Foundation's EIN?
Alexion Access Foundation's EIN (Employer Identification Number) is 20-8963321. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990-PF filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990-PF for fiscal year 2020 (received by the IRS June 30, 2022)
- Updated Form 990-PF for fiscal year 2021 (received by the IRS November 3, 2022)
- Updated Form 990-PF for fiscal year 2022 (received by the IRS November 10, 2023)
- Updated Form 990-PF for fiscal year 2023 (received by the IRS November 7, 2024)
- Updated Form 990-PF for fiscal year 2024 (received by the IRS August 7, 2025)
- Updated Form 990-PF for fiscal year 2025 (received by the IRS March 9, 2026)
- IRS filings on file for fiscal years 2020–2025
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