Spina Bifida Association
Funding Overview
From IRS Form 990 filings · 2019–2025
Total received
$366K
Foundation funders
23
Grants recorded
35
Years covered
2019–2025
Who funds Spina Bifida Association?
Spina Bifida Association is funded by 23 grantmakers, led by With Foundation ($191K), Numotion Foundation ($52K), Pharmaceutical Research and Manufacturers of America ($34K). In total, IRS Form 990 filings record $366K in grants to Spina Bifida Association between 2019–2025.
| Funder | Total given | Grants | Years |
|---|---|---|---|
| With Foundation | $191,000 | 1 | 2025 |
| Numotion Foundation | $51,750 | 1 | 2023 |
| Pharmaceutical Research and Manufacturers of America | $33,500 | 2 | 2023–2024 |
| O'Kane Family Foundation | $25,000 | 2 | 2023–2024 |
| Joyce S Mudd Foundation | $20,000 | 1 | 2021 |
| The Wright-Hager Foundation Inc | $13,000 | 3 | 2023–2025 |
| Huntington Clinical Foundation Inc | $7,500 | 1 | 2023 |
| Cedar Fair Charities Inc | $5,000 | 1 | 2025 |
| Robert & Joan Dircks Foundation Inc | $5,000 | 2 | 2024–2025 |
| Kiwanis Foundation of Alexandria VA Inc | $5,000 | 5 | 2019–2023 |
| The Elm Foundation | $2,107 | 2 | 2019–2020 |
| Cheviot Charitable Foundation | $1,800 | 2 | 2022–2023 |
| Holbrook R & Sarah M Davis Foundation Inc | $1,000 | 2 | 2024–2025 |
| The Autrey Foundation | $1,000 | 1 | 2024 |
| US Ventureschmidt Family Foundation | $1,000 | 1 | 2019 |
| Fanny S Gilfillan Memorial Inc | $600 | 1 | 2020 |
| Pioneer Bank Charitable Foundation | $500 | 1 | 2024 |
| Barry and Marci Brandt Family | $500 | 1 | 2024 |
| The Jamf Nation Global Foundation | $250 | 1 | 2020 |
| John E Fetzer Institute Inc | $200 | 1 | 2020 |
| Chase Family Foundation | $104 | 1 | 2022 |
| Annex Charitable Foundation Inc | $100 | 1 | 2023 |
| Equitrans Midstream Foundation | $100 | 1 | 2022 |
Funding over time
Grant dollars and counts received per year
From 2019 to 2025, annual grant giving ranged from $2K (2022) to $204K (2025). In 2025 it made 5 grants totaling $204K.
What grants has Spina Bifida Association received?
Individual grants from IRS Form 990 filings, newest first
| Year | Funder | Purpose | Amount |
|---|---|---|---|
| 2025 | With Foundation | PROJECT SUPPORT | $191,000 |
| 2025 | The Wright-Hager Foundation Inc | GENERAL SUPPORT | $5,000 |
| 2025 | Cedar Fair Charities Inc | Assistance to People | $5,000 |
| 2025 | Robert & Joan Dircks Foundation Inc | ADVOCATE FOR INDIVIDUALS WITH SPINA BIFIDA THROUGH RESEARCH AND ADVOCACY | $2,500 |
| 2025 | Holbrook R & Sarah M Davis Foundation Inc | CHARITABLE | $500 |
| 2024 | Pharmaceutical Research and Manufacturers of America | GENERAL CONTRIBUTION | $26,500 |
| 2024 | O'Kane Family Foundation | GENERAL PURPOSE | $15,000 |
| 2024 | The Wright-Hager Foundation Inc | GENERAL SUPPORT | $4,000 |
| 2024 | Robert & Joan Dircks Foundation Inc | ADVOCATE FOR INDIVIDUALS WITH SPINA BIFIDA THROUGH RESEARCH AND ADVOCACY | $2,500 |
| 2024 | The Autrey Foundation | CHARITABLE GIFT | $1,000 |
| 2024 | Holbrook R & Sarah M Davis Foundation Inc | CHARITABLE | $500 |
| 2024 | Pioneer Bank Charitable Foundation | 2024 BRONZE SPONSOR - ANNUAL WALK-N-ROLL | $500 |
| 2024 | Barry and Marci Brandt Family | MEMORY OF NANCY MOLITOR | $500 |
| 2023 | Numotion Foundation | UNRESTRICTED | $51,750 |
| 2023 | O'Kane Family Foundation | GENERAL PURPOSE | $10,000 |
| 2023 | Huntington Clinical Foundation Inc | DEFRAY THE COST OF ANNUAL CAMP | $7,500 |
| 2023 | Pharmaceutical Research and Manufacturers of America | General Contribution | $7,000 |
| 2023 | The Wright-Hager Foundation Inc | GENERAL SUPPORT | $4,000 |
| 2023 | Cheviot Charitable Foundation | UNRESTRICTED CHARITABLE CONTRIBUTION | $1,000 |
| 2023 | Kiwanis Foundation of Alexandria VA Inc | Community Services | $1,000 |
| 2023 | Annex Charitable Foundation Inc | UNRESTRICTED CHARITABLE GRANT | $100 |
| 2022 | Kiwanis Foundation of Alexandria VA Inc | Community Services | $1,000 |
| 2022 | Cheviot Charitable Foundation | UNRESTRICTED CHARITABLE CONTRIBUTION | $800 |
| 2022 | Chase Family Foundation | MEDICAL | $104 |
| 2022 | Equitrans Midstream Foundation | MATCHING GIFTS | $100 |
| 2021 | Joyce S Mudd Foundation | To help in providing the funding that is needed for the Association to operate its Collaborative Care Network | $20,000 |
| 2021 | Kiwanis Foundation of Alexandria VA Inc | Community Services | $1,000 |
| 2020 | The Elm Foundation | GENERAL USE | $1,147 |
| 2020 | Kiwanis Foundation of Alexandria VA Inc | Community Services | $1,000 |
| 2020 | Fanny S Gilfillan Memorial Inc | DONATION | $600 |
Showing 30 most recent of 35 recorded grants.
Frequently Asked Questions
Who funds Spina Bifida Association?
Spina Bifida Association is funded by 23 grantmakers, led by With Foundation ($191K), Numotion Foundation ($52K), Pharmaceutical Research and Manufacturers of America ($34K). In total, IRS Form 990 filings record $366K in grants to Spina Bifida Association between 2019–2025.
Who is Spina Bifida Association's largest funder?
With Foundation is the largest recorded funder of Spina Bifida Association, with $191K across 1 grant (2025).
How much grant funding has Spina Bifida Association received?
IRS 990 filings record $366K in grants to Spina Bifida Association across 35 grants from 23 funders between 2019–2025. Filings are published on a delay, so recent grants may not appear yet.
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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.
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