Charge Syndrome Foundation

Buffalo Grove, IL ·EIN 43-1642150 ·Grant funding profile from IRS 990 filings

Charge Syndrome Foundation also makes grants — see its funder profile →

$318K received 16 funders 35 grants · 2020–2024

Who funds Charge Syndrome Foundation?

Charge Syndrome Foundation is funded by 16 grantmakers, led by Leber Legacy Foundation ($142K), The Community Foundation of Greater ($71K), Lionel & Debra Dluna Family Foundation ($26K). In total, IRS Form 990 filings record $318K in grants to Charge Syndrome Foundation between 2020–2024.

What grants has Charge Syndrome Foundation received?

Individual grants from IRS Form 990 filings, newest first

YearFunderPurposeAmount
2024Leber Legacy FoundationCharitable Event$82,000
2024Honda Usa FoundationCHARGE SYNDROME IS A RARE GENETIC CONDITION MOST EVIDENT THROUGH UNIQUE FACIAL FEATURES AND IMPACTS MANY PARTS OF A CHILD'S BODY INCLUDING THEIR EYES, NERVES, HEART, NASAL PASSAGES, GENITALS AND EARS. THE CHARGE SYNDROME FOUNDATION ESTABLISHED THE ETHAN WOLFE RECREATIONAL ASSISTANCE PROGRAM TO ENABLE INDIVIDUALS WITH CHARGE THE OPPORTUNITY TO EXPERIENCE THE JOYS OF MOBILITY BY PARTICIPATING IN FUN, ENRICHING ACTIVITIES AND ACCESSING MUCH NEEDED RESOURCES AND EQUIPMENT. THIS INCLUDES ADAPTIVE BIKES, SUMMER CAMPS, AND THERAPEUTIC AND SPECIALIZED CLASSES. THE FOUNDATION ALSO FOCUSES ON GROWING ITS OUTREACH AND SUPPORT PROGRAMS; PROMOTING AWARENESS BY BUILDING NETWORKS AND PARTNERSHIPS; AND BY STAYING APPRISED OF LEADING-EDGE RESEARCH.$25,000
2024Lionel & Debra Dluna Family FoundationResearch for and education of the community with CHARGE syndrome disability$5,000
2024Alabama Power Foundation IncGENERAL/OPERATING$5,000
2024Komarek-Hyde-McQueen FoundationGeneral Charitable Purposes$1,500
2024Edward Jones FoundationPHILANTHROPY, VOLUNTARISM AND GRANTMAKING FOUNDATIONS$500
2024Jpmorgan Chase FoundationMATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)$200
2024Baxter International FoundationMATCHING GIFTS$180
2023Leber Legacy FoundationGeneral & Unrestricted$60,000
2023The Community Foundation of GreaterHEALTH; DAF FUNDED$50,000
2023The Blackbaud Giving FundGENERAL SUPPORT$5,659
2023Lionel & Debra Dluna Family FoundationResearch for and education of the community with CHARGE syndrome disability$5,000
2023Baxter International FoundationMATCHING GIFTS$120
2022The Blackbaud Giving FundGENERAL SUPPORT$15,450
2022The Community Foundation of GreaterGENERAL SUPPORT + SPECIAL PORGRAMS$11,000
2022Lionel & Debra Dluna Family FoundationResearch for and Education of the community with CHARGE syndrome disability$5,000
2022The Pfizer Foundation IncMATCHING GIFTS$50
2022Jpmorgan Chase FoundationGENERAL OPERATING SUPPORT$20
2021The Community Foundation of GreaterGENERAL SUPPORT$10,000
2021Lionel & Debra Dluna Family FoundationEducation for Disabled$10,000
2021American Express FoundationGENERAL SUPPORT$8,025
2021American Express FoundationGENERAL SUPPORT$50
2021American Express FoundationGENERAL SUPPORT$30
2021American Express FoundationGENERAL SUPPORT$30
2021American Express FoundationGENERAL SUPPORT$10
2020American Express FoundationGENERAL SUPPORT$8,474
2020United Way WorldwideGENERAL CHARITABLE OPERATIONS$6,758
2020Enterprise Holdings FoundationProgram Support$1,500
2020Lionel & Debra Dluna Family FoundationEDUCATION FOR DISABLED$1,000
2020Western Union FoundationGIFT MATCHING GRANT$100

Showing 30 most recent of 35 recorded grants.

Frequently Asked Questions

Who funds Charge Syndrome Foundation?

Charge Syndrome Foundation is funded by 16 grantmakers, led by Leber Legacy Foundation ($142K), The Community Foundation of Greater ($71K), Lionel & Debra Dluna Family Foundation ($26K). In total, IRS Form 990 filings record $318K in grants to Charge Syndrome Foundation between 2020–2024.

Who is Charge Syndrome Foundation's largest funder?

Leber Legacy Foundation is the largest recorded funder of Charge Syndrome Foundation, with $142K across 2 grants (2023–2024).

How much grant funding has Charge Syndrome Foundation received?

IRS 990 filings record $318K in grants to Charge Syndrome Foundation across 35 grants from 16 funders between 2020–2024. Filings are published on a delay, so recent grants may not appear yet.

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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.