Charge Syndrome Foundation
Funding Overview
From IRS Form 990 filings · 2019–2026
Total received
$373K
Foundation funders
16
Grants recorded
42
Years covered
2019–2026
Who funds Charge Syndrome Foundation?
Charge Syndrome Foundation is funded by 16 grantmakers, led by Leber Legacy Foundation ($142K), The Community Foundation of Greater Birmingham ($71K), Honda USA Foundation ($50K). In total, IRS Form 990 filings record $373K in grants to Charge Syndrome Foundation between 2019–2026.
| Funder | Total given | Grants | Years |
|---|---|---|---|
| Leber Legacy Foundation | $142,000 | 2 | 2023–2024 |
| The Community Foundation of Greater Birmingham | $71,000 | 3 | 2021–2023 |
| Honda USA Foundation | $50,000 | 2 | 2024–2026 |
| Lionel & Debra Dluna Family Foundation | $36,000 | 6 | 2020–2025 |
| American Express Foundation | $25,313 | 13 | 2020–2021 |
| The Blackbaud Giving Fund | $21,109 | 2 | 2022–2023 |
| United Way Worldwide | $17,912 | 2 | 2019–2020 |
| Alabama Power Foundation Inc | $5,000 | 1 | 2024 |
| Komarek-Hyde-McQueen Foundation | $1,500 | 1 | 2024 |
| Enterprise Holdings Foundation | $1,500 | 1 | 2020 |
| Edward Jones Foundation | $500 | 1 | 2024 |
| Baxter International Foundation | $300 | 2 | 2023–2024 |
| JPMorgan Chase Foundation | $220 | 2 | 2022–2024 |
| Western Union Foundation | $100 | 1 | 2020 |
| Verizon Foundation | $80 | 2 | 2020 |
| The Pfizer Foundation Inc | $50 | 1 | 2022 |
Funding over time
Grant dollars and counts received per year
From 2019 to 2026, annual grant giving ranged from $10K (2025) to $121K (2023). In 2026 it made 1 grant totaling $25K.
What grants has Charge Syndrome Foundation received?
Individual grants from IRS Form 990 filings, newest first
| Year | Funder | Purpose | Amount |
|---|---|---|---|
| 2026 | Honda USA Foundation | THE ETHAN WOLFE RECREATIONAL ASSISTANCE PROGRAM (EWRAP) IS A NEED-BASED PROGRAM THAT REMOVES FINANCIAL BARRIERS TO INDIVIDUALS WITH CHARGE SYNDROME, BY ENABLING THEM TO PARTICIPATE IN RECREATIONAL ACTIVITIES THAT ENHANCE THEIR QUALITY OF LIFE. THROUGH ADAPTIVE EQUIPMENT AND INCLUSIVE ACTIVITIES, EWRAP EMPOWERS CHILDREN WITH CHARGE SYNDROME TO ENGAGE IN EXPERIENCES THAT PROMOTE DEVELOPMENT, INDEPENDENCE, AND JOY. BUILDING ON THEIR UNIQUE STRENGTHS, CHALLENGES, AND INTERESTS, EACH AWARD IS CUSTOMIZED TO MEET THE RECIPIENTS SPECIFIC NEEDS. FUNDS WILL SUPPORT ADAPTIVE RECREATIONAL EQUIPMENT SUCH AS BICYCLES, TRICYCLES, AND TRAILERS, OR ENABLE PARTICIPATION IN ADAPTIVE ACTVITIES INCLUDING HIPPOTHERAPY, MUSIC CLASSES, SWIM LESSONS, SUMMER CAMPS, AND TEAM SPORTS. | $25,000 |
| 2025 | Lionel & Debra Dluna Family Foundation | Research for and education of the community with CHARGE syndrome disability | $10,000 |
| 2024 | Leber Legacy Foundation | Charitable Event | $82,000 |
| 2024 | Honda USA Foundation | CHARGE SYNDROME IS A RARE GENETIC CONDITION MOST EVIDENT THROUGH UNIQUE FACIAL FEATURES AND IMPACTS MANY PARTS OF A CHILD'S BODY INCLUDING THEIR EYES, NERVES, HEART, NASAL PASSAGES, GENITALS AND EARS. THE CHARGE SYNDROME FOUNDATION ESTABLISHED THE ETHAN WOLFE RECREATIONAL ASSISTANCE PROGRAM TO ENABLE INDIVIDUALS WITH CHARGE THE OPPORTUNITY TO EXPERIENCE THE JOYS OF MOBILITY BY PARTICIPATING IN FUN, ENRICHING ACTIVITIES AND ACCESSING MUCH NEEDED RESOURCES AND EQUIPMENT. THIS INCLUDES ADAPTIVE BIKES, SUMMER CAMPS, AND THERAPEUTIC AND SPECIALIZED CLASSES. THE FOUNDATION ALSO FOCUSES ON GROWING ITS OUTREACH AND SUPPORT PROGRAMS; PROMOTING AWARENESS BY BUILDING NETWORKS AND PARTNERSHIPS; AND BY STAYING APPRISED OF LEADING-EDGE RESEARCH. | $25,000 |
| 2024 | Lionel & Debra Dluna Family Foundation | Research for and education of the community with CHARGE syndrome disability | $5,000 |
| 2024 | Alabama Power Foundation Inc | GENERAL/OPERATING | $5,000 |
| 2024 | Komarek-Hyde-McQueen Foundation | General Charitable Purposes | $1,500 |
| 2024 | Edward Jones Foundation | PHILANTHROPY, VOLUNTARISM AND GRANTMAKING FOUNDATIONS | $500 |
| 2024 | JPMorgan Chase Foundation | MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT) | $200 |
| 2024 | Baxter International Foundation | MATCHING GIFTS | $180 |
| 2023 | Leber Legacy Foundation | General & Unrestricted | $60,000 |
| 2023 | The Community Foundation of Greater Birmingham | HEALTH; DAF FUNDED | $50,000 |
| 2023 | The Blackbaud Giving Fund | GENERAL SUPPORT | $5,659 |
| 2023 | Lionel & Debra Dluna Family Foundation | Research for and education of the community with CHARGE syndrome disability | $5,000 |
| 2023 | Baxter International Foundation | MATCHING GIFTS | $120 |
| 2022 | The Blackbaud Giving Fund | GENERAL SUPPORT | $15,450 |
| 2022 | The Community Foundation of Greater Birmingham | GENERAL SUPPORT + SPECIAL PORGRAMS | $11,000 |
| 2022 | Lionel & Debra Dluna Family Foundation | Research for and Education of the community with CHARGE syndrome disability | $5,000 |
| 2022 | The Pfizer Foundation Inc | MATCHING GIFTS | $50 |
| 2022 | JPMorgan Chase Foundation | GENERAL OPERATING SUPPORT | $20 |
| 2021 | Lionel & Debra Dluna Family Foundation | Education for Disabled | $10,000 |
| 2021 | The Community Foundation of Greater Birmingham | GENERAL SUPPORT | $10,000 |
| 2021 | American Express Foundation | GENERAL SUPPORT | $8,025 |
| 2021 | American Express Foundation | GENERAL SUPPORT | $50 |
| 2021 | American Express Foundation | GENERAL SUPPORT | $30 |
| 2021 | American Express Foundation | GENERAL SUPPORT | $30 |
| 2021 | American Express Foundation | GENERAL SUPPORT | $10 |
| 2020 | American Express Foundation | GENERAL SUPPORT | $8,474 |
| 2020 | American Express Foundation | GENERAL SUPPORT | $8,474 |
| 2020 | United Way Worldwide | GENERAL CHARITABLE OPERATIONS | $6,758 |
Showing 30 most recent of 42 recorded grants.
Frequently Asked Questions
Who funds Charge Syndrome Foundation?
Charge Syndrome Foundation is funded by 16 grantmakers, led by Leber Legacy Foundation ($142K), The Community Foundation of Greater Birmingham ($71K), Honda USA Foundation ($50K). In total, IRS Form 990 filings record $373K in grants to Charge Syndrome Foundation between 2019–2026.
Who is Charge Syndrome Foundation's largest funder?
Leber Legacy Foundation is the largest recorded funder of Charge Syndrome Foundation, with $142K across 2 grants (2023–2024).
How much grant funding has Charge Syndrome Foundation received?
IRS 990 filings record $373K in grants to Charge Syndrome Foundation across 42 grants from 16 funders between 2019–2026. Filings are published on a delay, so recent grants may not appear yet.
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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.
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