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OHF Global Registry Initiative

The Oxalosis & Hyperoxaluria Foundation

Foundation Rolling (Quarterly) Grants for Science Research

Funding Amount

Varies

Deadline

Rolling / Open

Grant Type

foundation

Overview

OHF Global Registry Initiative

Funder: The Oxalosis & Hyperoxaluria Foundation (OHF)

Purpose: Seeking proposals to develop international collaborative patient registries and databases to identify the determinants of the clinical manifestations and prognosis of patients with primary hyperoxaluria.

Focus Areas:

  • The influence of urinary oxalate level and other urine parameters on renal outcomes

  • The influence of dietary intake on urinary oxalate level and renal outcomes

  • Genotype-phenotype correlations within and between primary hyperoxaluria types

  • Development of standardized registries and databases in countries where none exist
  • Funding Support:

  • Initial funding for registry development and data collection

  • Additional funds available for registry maintenance to sites that achieve predefined benchmarks (e.g., patient enrollment targets) in the first year
  • Project Timeline: Proposed timelines can be 1 to 2 years

    Required Element: A detailed data-sharing plan for key data elements collected under this program

    Application Deadline: Open/Rolling

    Geographic Scope: International

    Expected Outcomes: Successful proposals will benefit clinicians in treating primary hyperoxaluria patients and provide a framework for the evaluation of existing and potential new therapies.

    Focus Areas & Funding Uses

    Fields of Work

    science-research

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