Muscular Dystrophy Association Inc logo

MDA Venture Philanthropy Program

Muscular Dystrophy Association Inc

Funding Amount

Varies by project; example: $2 million for Phase 1 clinical trial

Deadline

Deadline not published

Grant Type

Foundation

Overview

Geographic Scope: United States and International

Program Description

MDA's Venture Philanthropy model provides strategic funding for drug development and clinical trials with a focus on translating research into therapies. This program uses innovative funding mechanisms including returns on investment based on future drug sales.

Focus Areas

  • Phase 1 and other clinical trial funding
  • Drug development acceleration
  • Moving therapies from laboratory to clinic
  • Novel therapeutic approaches

Notable Example

VBP15 Program (ReveraGen BioPharma):

  • International consortium funding model
  • MDA participated in coordinated venture philanthropy
  • $2 million provided for Phase 1 clinical trial of VBP15 for Duchenne muscular dystrophy
  • Funding structured to provide return on investment based on future drug sales
  • Multiple funding organizations: MDA, Joining Jack Foundation (UK), The Duchenne Research Fund (UK), Duchenne Children's Trust (UK)
  • Multiple tranches of funding as milestones achieved

Strategic Approach

  • Co-funding arrangements with other nonprofits, government agencies, and pharmaceutical companies
  • Focus on reducing time from drug development to FDA approval
  • Supporting promising compounds showing efficacy in preclinical studies
  • Emphasis on therapies addressing unmet medical needs

Contact Information

  • Phone: 800-572-1717
  • Email: ResourceCenter@mdausa.org
  • Address: MDA, 1016 W Jackson Blvd #1073, Chicago, IL 60607

How to Apply

Application Process

Venture Philanthropy is typically not a traditional grant application program. Instead:

Approach:

  • Innovative companies with promising drug candidates approach MDA and other organizations
  • MDA evaluates fit with strategic priorities
  • Coordinated funding through consortium model
  • Based on milestones and de-risking of drug development

Contact for Inquiries:

  • Phone: 800-572-1717
  • Email: ResourceCenter@mdausa.org (or research team contact)
  • Website: mda.org (Science & Research > Funding Opportunities)

Note: Companies and organizations interested in venture philanthropy partnerships should contact MDA's research department directly to discuss opportunities.

What Muscular Dystrophy Association Inc actually gave

Source: IRS Form 990, 2025

Grants in 2025
193
Total given
$12.57M
Median grant
$40K
Range
$6,025–$642K
  • By dollars: California 13%, New York 10%, Massachusetts 7%. Top recipient cities: Atlanta, GA; Los Angeles, CA; Boston, MA.
  • 0% of grants with a stated purpose were for general or operating support.
  • 11% of recipients were new grantees, not repeat recipients.

Example grants

  • University of Washington Medical Center · Seattle, WA

    Medical diagnosis

    $642K

  • Johns Hopkins University- CG · Baltimore, MD

    Medical diagnosis and research

    $579K

  • The Regents of the University of California Los Angeles · La Jolla, CA

    Medical diagnosis research and movr registry support

    $411K

  • University of Rochester - · Rochester, NY

    Research

    $399K

  • Massachusetts General Hospital · Boston, MA

    Medical diagnosis and research

    $378K

IRS Form 990, 2025. Amounts as reported by the funder. Full 990 history →

Focus Areas & Funding Uses

Fields of Work

  • Science research

Categories

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