Myasthenia Gravis Foundation logo

Myasthenia Gravis Foundation

WESTBOROUGH, MA EIN: 13-5672224 Website

Committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs and advocacy.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$13.6M

+12.8% YoY

Annual Giving

$710K

+91.9% YoY

Grant Count

8

+100.0% YoY

Avg Grant Size

$89K

-4.1% YoY

About Myasthenia Gravis Foundation

Based on IRS filings

Myasthenia Gravis Foundation is a nonprofit organization focused on Medical Research, based in WESTBOROUGH, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $13.6M in total assets. In 2024, it awarded 8 grants totaling $710K. Net investment income was $470K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

8states

Cities

AshbumAshburnDavisDurhamErwin SquareFraminghamLa JollaNew HavenRochesterWashingtonWest SacramentoWynnewood

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$2M$3M$5M$6M2020202120232024
Metric202420232021
Total Assets$13,552,735$12,011,651$12,076,757
Revenue$5,670,792$3,555,325$3,840,681
Expenses$5,078,413$3,580,103$3,008,153
Qualifying Distributions
Net Investment Income$469,674$389,120$682,651
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$178K$355K$533K$710K0 grants20206 grants20214 grants20238 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 8 recipients in 2024

Yale University$300KUppsala University$110KYale University$110KDuke University School o…$110KThe George Washington Un…$50KAlira Health$10KAlira Health$10KAlira Health$10K

Grant Size Distribution

18 grants across all recorded years

4<$50K5$50–100K8$100–250K1$250–500K$500K–1M$1–5M$5M+

Open Grants

5 open opportunities from Myasthenia Gravis Foundation

Show all 5 →

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include Yale University ($300,000), Uppsala University ($110,000), Yale University ($110,000).

RecipientPurposeAmount
Yale University New Haven, CTDefining new autoimmune mechanisms in seronegative MG$300,000
Uppsala University Validating diagnostic and prognostic serum biomarkers for AChR antibody seropositive MG$110,000
Yale University New Haven, CTNovel mechanistic insights into the MuSK-specific autoantibody repertoire$110,000
Duke University School of Medicine Erwin Square, NCDeciphering Immunological Biomarkers in Myasthenia Gravis by Using Multiomics.$110,000
The George Washington University Ashbum, VADr Kaminski's MG Net Pilot Studies program$50,000
Alira Health Framingham, MAPhysical activity and factors associated with exercise participation among patients with myasthenia.$10,000
Alira Health Framingham, MARole of race and income in management of myasthenia gravis.$10,000
Alira Health Framingham, MAInfluence of race/ethnicity on clinical features of MG and inequalities in clinical care.$10,000

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

Samantha MastersonChief Executive Officer$323KCraig StengerVice President, Operations$200KMichael AntonellisVice President, Global Marke…$182KDaryl LeeNational Director, Finance$124KCaroline GaylorNational Senior Director of …$120KMerideth O'ConnerAVP, Patient Engagement$119KLaura ChandlerNational Director, Academic …$112KTasha DuncanNational Director, Strategic…$110K

From 2024 filing

NameTitleHoursCompensation
Brian GladdenChair8
Robert ThomasVice Chair8
Adrejia BoutteSecretary8
Justin StachtiarisTreasurer8
Ani MitraDirector4
Callum SchjerningDirector4
Clyde HoseinDirector4
Kelly Gwathmey MDDirector4
Kevin O'Connor MDDirector4
Kyle SellDirector4
Paul Strumph MDDirector4
Richard J Nowak MDDirector4
Esther LandDirector (non-voting)4
Marcia LorimerDirector (non-voting)4
Mark KalishDirector (non-voting)4
Sam SchuloffDirector (non-voting)4
Susan KlingerDirector (non-voting)4
Samantha MastersonChief Executive Officer40$323,026
Craig StengerVice President, Operations40$200,391
Michael AntonellisVice President, Global Marketing40$181,909
Daryl LeeNational Director, Finance40$124,220
Caroline GaylorNational Senior Director of Development40$120,304
Merideth O'ConnerAVP, Patient Engagement40$119,007
Laura ChandlerNational Director, Academic Affiars40$112,483
Tasha DuncanNational Director, Strategic Parternships40$109,503

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is Myasthenia Gravis Foundation?

Myasthenia Gravis Foundation is a nonprofit organization focused on Medical Research, based in WESTBOROUGH, MA. It holds $13.6M in total assets as of 2024.

How large is Myasthenia Gravis Foundation?

As of 2024, Myasthenia Gravis Foundation holds $13.6M in total assets with $5.7M in annual revenue. It awarded 8 grants totaling $710K in 2024.

Where does Myasthenia Gravis Foundation operate?

Myasthenia Gravis Foundation has awarded grants in California, Connecticut, District of Columbia, Massachusetts, Minnesota, North Carolina, Pennsylvania, Virginia.

What size grants does Myasthenia Gravis Foundation award?

In 2024, Myasthenia Gravis Foundation awarded 8 grants totaling $710K — an average of about $89K per grant, based on its IRS Form 990 filings.

What is Myasthenia Gravis Foundation's EIN?

Myasthenia Gravis Foundation's EIN (Employer Identification Number) is 13-5672224. IRS Form 990 filing data is available on this page for 2020–2024.

Explore Open Grants

Browse active grant opportunities in Myasthenia Gravis Foundation's focus areas in our free grants database

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Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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