TO FUND TRANSFORMATIVE RESEARCH TO FIND TREATMENTS, AND ULTIMATELY A CURE, FOR HUNTINGTON'S DISEASE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$22.0M
+20.5% YoY
Annual Giving
$2.1M
-32.9% YoY
Grant Count
10
-9.1% YoY
Avg Grant Size
$211K
-26.2% YoY
About Hereditary Disease Foundation
Based on IRS filings
Hereditary Disease Foundation is a nonprofit organization focused on Medical Research, based in NEW YORK, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $22.0M in total assets. In 2024, it awarded 10 grants totaling $2.1M. Net investment income was $1.2M.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $21,978,294 | $18,234,308 | $16,776,193 |
| Revenue | $7,899,221 | $2,578,841 | $4,522,686 |
| Expenses | $4,524,145 | $4,738,635 | $2,603,305 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $1,243,205 | $488,200 | $86,093 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
50 grants across all recorded years
Open Grants
2 open opportunities from Hereditary Disease Foundation
Hereditary Disease Foundation: Postdoctoral Researcher Fellowships Grant
HEREDITARY DISEASE FOUNDATION
Amount
Up to US $200,000
Deadline
Rolling / Open
Hereditary Disease Foundation: Transformative Research Award Grant
HEREDITARY DISEASE FOUNDATION
Amount
US $300,000 - US $500,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| MEGHAN DONALDSON | CEO | 40 | $110,000 |
| KAREN NEWMAN | CHAIR | 24 | $12,000 |
| NANCY S WEXLER PHD | PRESIDENT | 1 | — |
| ANNE B YOUNG MD PHD | VICE CHAIR | 1 | — |
| BRUCE DONALDSON | TREASURER | 1 | — |
| ALICE WEXLER PHD | SECRETARY | 1 | — |
| C FRANK BENNETT PHD | DIRECTOR | 1 | — |
| ROBI BLUMENSTEIN | DIRECTOR | 1 | — |
| SANDY FOX | DIRECTOR | 1 | — |
| TACIE FOX | DIRECTOR | 1 | — |
| BERTA A GEHRY | DIRECTOR | 1 | — |
| FRANK O GEHRY | DIRECTOR | 1 | — |
| DAVID HOUSMAN PHD | DIRECTOR | 1 | — |
| JOAN LEIMAN PHD | DIRECTOR | 1 | — |
| HERBERT PARDES MD | DIRECTOR (THROUGH 4/24) | 1 | — |
| LAUREN BAKER PINKUS | DIRECTOR | 1 | — |
| LESLIE M THOMPSON PHD | DIRECTOR | 1 | — |
| DAVID ZWALLY | DIRECTOR | 1 | — |
| MELISSA MOSER | DIRECTOR | 1 | — |
| TIM KELLEHER | CFO | 6 | $42,765 |
| SARAH HERNANDEZ | DIR. OF RESEARCH PROGRAMS | 40 | $143,929 |
| JULIE PORTER | DIR. OF ADMINISTRATION | 40 | $116,065 |
| ERICA MATISZ | DIR. OF DEVELOPMENT | 40 | $108,500 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Hereditary Disease Foundation?
Hereditary Disease Foundation is a nonprofit organization focused on Medical Research, based in NEW YORK, NY. It holds $22.0M in total assets as of 2024.
How large is Hereditary Disease Foundation?
As of 2024, Hereditary Disease Foundation holds $22.0M in total assets with $7.9M in annual revenue. It awarded 10 grants totaling $2.1M in 2024.
Where does Hereditary Disease Foundation operate?
Hereditary Disease Foundation has awarded grants in Alabama, California, Florida, Illinois, Massachusetts, Missouri, New York, Pennsylvania, Texas, Washington.
What size grants does Hereditary Disease Foundation award?
In 2024, Hereditary Disease Foundation awarded 10 grants totaling $2.1M — an average of about $211K per grant, based on its IRS Form 990 filings.
What is Hereditary Disease Foundation's EIN?
Hereditary Disease Foundation's EIN (Employer Identification Number) is 23-7376197. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Hereditary Disease Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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