Amyotrophic Lateral Sclerosis

Foundation · Grantmaker Tampa, FL EIN: 94-3124732 Website

OUR MISSION IS TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.

Key facts about Amyotrophic Lateral Sclerosis

In short: Amyotrophic Lateral Sclerosis gave $1.5M across 1 grant in 2023 (avg $1.5M), mostly in Virginia. Source: 2023 IRS Form 990 filing.

EIN: 94-3124732
Latest 990 filing: Form 990 filing, 2023
Annual giving (2023): $1,503,254
Grants made (2023): 1
Average grant: $1,503,254
Median grant: $1,503,254
Total assets: $2,179,124
Primary geography: Virginia (100% of itemized 2023 grant dollars)

Data from IRS Form 990 filing, 2023; updated September 2026.

Quick answers about Amyotrophic Lateral Sclerosis

How much does Amyotrophic Lateral Sclerosis give each year?

Amyotrophic Lateral Sclerosis gave $1.5M across 1 grant in 2023, according to its 2023 IRS Form 990 filing. In 2022 it gave $403K across 2 grants.

How Amyotrophic Lateral Sclerosis gives

Giving grew 498% from 2020 to 2023. Method

From the foundation's IRS Form 990 filings. Methodology.

Next steps with Amyotrophic Lateral Sclerosis

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Financial Overview

From 2023 IRS Form 990 filing · View filing

Total Assets

$2.2M

-17.9% YoY

Annual Giving

$1.5M

+273.1% YoY

Grant Count

-50.0% YoY

Avg Grant Size

$1.5M

+646.1% YoY

About Amyotrophic Lateral Sclerosis

Based on IRS filings

Amyotrophic Lateral Sclerosis is a nonprofit organization, based in Tampa, FL. IRS filing data is available from 2020 through 2023. As of 2023, the organization holds $2.2M in total assets. In 2023, it awarded 1 grant totaling $1.5M. Net investment income was $253K.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

Virginia $1.5M (100%)

Share of all 1 itemized 2023 grant dollars.

States

District of Columbia Virginia

Cities

WashingtonArlington

Financial History

Multi-year comparison from IRS filings

Revenue

Expenses

Qualifying Distributions

Net Investment Income

Metric	2023	2022	2021
Total Assets	$2,179,124	$2,655,654	$1,859,209
Revenue	$3,983,976	$4,199,844	$2,660,252
Expenses	$4,341,253	$3,074,863	$2,454,446
Qualifying Distributions	—	—	—
Net Investment Income	$252,604	$1,416	$2,447
Distributable Amount	—	—	—

Data update history

When this profile's IRS filing data changed on Grantable

March 3, 2026 IRS filings on file for fiscal years 2020–2023

Giving Over Time

Total grant dollars and number of grants per year

Grant Insights

How this funder distributes its grants

Top Recipients

Top 1 recipients in 2023

Grant Size Distribution

7 grants across all recorded years

Giving History

Grant recipients and amounts by year

Recipient	Purpose	Amount
THE ALS ASSOCIATION Arlington, VA	RESEARCH	$1,503,254

Leadership & Key People

Officers and directors from IRS filings

Amyotrophic Lateral Sclerosis is led by Ray Carson, President & CEO on every filing since 2020; 1 of 15 officers listed in 2023 is compensated.

Officers on the 2023 filing

Ray Carson

President & CEO

On filings since 2020

40 hrs/week

$93K (2020) → $163K (2023)
Hampton Graham

Chairman

Vice Chariman → Chairman, 2022

On filings since 2020

3 hrs/week

No compensation reported
Alecia Jones Bailey

Member

Trustee → Member, 2023

On filings since 2020

3 hrs/week

No compensation reported
Glenn Stambaugh

Vice Chairman

Treasurer → Vice Chairman, 2022

On filings since 2020

3 hrs/week

No compensation reported
Jo-Ann Clynch

Member

Trustee → Member, 2023

On filings since 2020

3 hrs/week

No compensation reported
John Cannistra

Immediate Past Chair

Chairman → Immediate Past Chairman, 2022
Immediate Past Chairman → Immediate Past Chair, 2023

On filings since 2020

3 hrs/week

No compensation reported
John Collins

Member

Trustee → Member, 2023

On filings since 2020

3 hrs/week

No compensation reported
Melissa Spring

Member

Trustee → Member, 2023

On filings since 2020

3 hrs/week

No compensation reported
Sharon Sam Maybrook

Secretary

On filings since 2020

3 hrs/week

No compensation reported
Troy Fields

Treasurer

Trustee → Treasurer, 2022

On filings since 2020

3 hrs/week

No compensation reported
Jeff Elbert

Member

Trustee → Member, 2023

On filings since 2021

3 hrs/week

No compensation reported
Ashok Verma MD

Member

Trustee → Member, 2023

On filings since 2022

No compensation reported
Brian Chappell

Member

Trustee → Member, 2023

On filings since 2022

3 hrs/week

No compensation reported
Brittany Harvey

Member

Trustee → Member, 2023

On filings since 2022

3 hrs/week

No compensation reported
Christine Hopkins Reagan

Member

New on the 2023 filing

3 hrs/week

No compensation reported

Former officers (6)

Former: Kevin Conn (2020–2022) — Trustee
Former: Christine Hopkins Rankin (2022) — Trustee
Former: Christine Hopkins (2021) — Trustee
Former: Gabby Harrison (2020) — Director of Operations
Former: Tim Cummings (2020) — Trustee
Former: Wendy Bitner Rodin (2020) — Trustee

Data from IRS Form 990 filings, 2020–2023. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.