Amyotrophic Lateral Sclerosis
OUR MISSION IS TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
Financial Overview
From 2023 IRS Form 990-PF · View filing
Total Assets
$2.2M
-17.9% YoY
Annual Giving
$1.5M
+273.1% YoY
Grant Count
1
-50.0% YoY
Avg Grant Size
$1.5M
+646.1% YoY
About Amyotrophic Lateral Sclerosis
Based on IRS filings
Amyotrophic Lateral Sclerosis is a nonprofit organization, based in TAMPA, FL. IRS filing data is available from 2020 through 2023. As of 2023, the organization holds $2.2M in total assets. In 2023, it awarded 1 grants totaling $1.5M. Net investment income was $253K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2023 | 2022 | 2021 |
|---|---|---|---|
| Total Assets | $2,179,124 | $2,655,654 | $1,859,209 |
| Revenue | $3,983,976 | $4,199,844 | $2,660,252 |
| Expenses | $4,341,253 | $3,074,863 | $2,454,446 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $252,604 | $1,416 | $2,447 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2023
Grant Size Distribution
7 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2023 grants, the largest include The Als Association ($1,503,254).
| Recipient | Purpose | Amount |
|---|---|---|
| THE ALS ASSOCIATION ARLINGTON, VA | RESEARCH | $1,503,254 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2023 IRS filing
From 2023 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| HAMPTON GRAHAM | CHAIRMAN | 3 | — |
| JOHN CANNISTRA | IMMEDIATE PAST CHAIR | 3 | — |
| GLENN STAMBAUGH | VICE CHAIRMAN | 3 | — |
| TROY FIELDS | TREASURER | 3 | — |
| SHARON MAYBROOK | SECRETARY | 3 | — |
| ALECIA BAILEY | MEMBER | 3 | — |
| BRIAN CHAPPELL | MEMBER | 3 | — |
| JO-ANN CLYNCH | MEMBER | 3 | — |
| JOHN COLLINS | MEMBER (TERM ENDED 12/14/22) | 3 | — |
| JEFF ELBERT | MEMBER | 3 | — |
| BRITTANY HARVEY | MEMBER | 3 | — |
| CHRISTINE HOPKINS REAGAN | MEMBER | 3 | — |
| MELISSA SPRING | MEMBER | 3 | — |
| DR ASHOK VERMA MD | MEMBER | — | — |
| RAY CARSON | PRESIDENT/CEO | 40 | $163,308 |
Frequently Asked Questions
How large is Amyotrophic Lateral Sclerosis?
As of 2023, Amyotrophic Lateral Sclerosis holds $2.2M in total assets with $4.0M in annual revenue. It awarded 1 grants totaling $1.5M in 2023.
Where does Amyotrophic Lateral Sclerosis operate?
Amyotrophic Lateral Sclerosis has awarded grants in District of Columbia, Virginia.
What size grants does Amyotrophic Lateral Sclerosis award?
In 2023, Amyotrophic Lateral Sclerosis awarded 1 grants totaling $1.5M — an average of about $1.5M per grant, based on its IRS Form 990 filings.
What is Amyotrophic Lateral Sclerosis's EIN?
Amyotrophic Lateral Sclerosis's EIN (Employer Identification Number) is 94-3124732. IRS Form 990 filing data is available on this page for 2020–2023.
Explore Open Grants
Browse active grant opportunities in Amyotrophic Lateral Sclerosis's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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