PKD Free Babies Alliance Ltd

Foundation · Grantmaker Westbury, NY EIN: 87-1389001 Website

PKD Free Babies Alliance, Ltd. (PKD-Free Alliance) is a 501(c)(3) nonprofit organization focused on ending Polycystic Kidney Disease (PKD) by preventing the disease from being passed down to the next generation. We are committed to enhancing generational health by ensuring a PKD-free future.

Key facts about PKD Free Babies Alliance Ltd

EIN: 87-1389001
Latest 990 filing: Form 990-PF, 2024
Annual giving (2024): $100,000
Grants made (2024): 1
Average grant: $100,000
Median grant: $100,000
Total assets: $1,184,785
Primary geography: Utah (100% of itemized 2024 grant dollars)

Data from IRS Form 990-PF, 2024; updated September 2026.

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Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$1.2M

+4.9% YoY

Annual Giving

$100K

Grant Count

Avg Grant Size

$100K

About PKD Free Babies Alliance Ltd

Based on IRS filings

PKD Free Babies Alliance Ltd is a nonprofit organization focused on Health, based in Westbury, NY. IRS filing data is available from 2022 through 2024. As of 2024, the organization holds $1.2M in total assets. In 2024, it awarded 1 grant totaling $100K. Net investment income was $17K.

Focus Areas

Health

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

Utah $100K (100%)

Share of all 1 itemized 2024 grant dollars.

States

Utah

Cities

Salt Lake City

Financial History

Multi-year comparison from IRS filings

Revenue

Expenses

Qualifying Distributions

Net Investment Income

Metric	2024	2023	2022
Total Assets	$1,184,785	$1,129,357	$527,072
Revenue	$445,120	$830,898	$979,586
Expenses	$391,130	$228,613	$444,922
Qualifying Distributions	—	—	—
Net Investment Income	$16,999	$23,795	$3,419
Distributable Amount	—	—	—

Data update history

When this profile's IRS filing data changed on Grantable

March 3, 2026 IRS filings on file for fiscal years 2022–2024

Giving Over Time

Total grant dollars and number of grants per year

Grant Insights

How this funder distributes its grants

Top Recipients

Top 1 recipients in 2024

Grant Size Distribution

1 grants across all recorded years

Open Grants

1 open opportunity from PKD Free Babies Alliance Ltd

Foundation

PKD-Free Babies Funding Grant

PKD Free Babies Alliance Ltd

Amount

$3,000 - $9,000

Deadline

Rolling / Open

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest recipients include University of Utah ($100,000).

Recipient	Purpose	Amount
University of Utah Salt Lake City, UT	A grant was awarded to the kidney transplant program at U of U Health (University of Utah). U of U has been caring for patients since 1965. The grant was awarded for awareness and outreach efforts, relative to a new pilot program to help link those with kidney transplant needs with Kidney transplant donors. U of U Health (University of Utah) was selected because of they historically have performed many kidney transplants with survival rates higher than the national average.	$100,000