Foundation for Prader-willi
TO ELIMINATE THE CHALLENGES OF PRADER WILLI SYNDROME THROUGH THE ADVANCEMENT OF RESEARCH AND THERAPEUTIC DEVELOPMENT.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$8.9M
-6.8% YoY
Annual Giving
$2.6M
+16.5% YoY
Grant Count
20
+25.0% YoY
Avg Grant Size
$130K
-6.8% YoY
About Foundation for Prader-willi
Based on IRS filings
Foundation for Prader-willi is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in COVINA, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $8.9M in total assets. In 2024, it awarded 20 grants totaling $2.6M. Net investment income was $496K.
Focus Areas
Ready to take the next step with Foundation for Prader-willi?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $8,871,895 | $9,519,457 | $8,344,580 |
| Revenue | $6,173,660 | $6,535,580 | $5,083,937 |
| Expenses | $6,062,339 | $6,352,142 | $5,088,497 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $495,956 | $294,425 | $83,302 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
83 grants across all recorded years
Open Grants
1 open opportunity from Foundation for Prader-willi
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| PAUL WISSMAN | CHAIRPERSON | 1 | — |
| JUSTIN NELSON | VICE CHAIRPERSON | 0.5 | — |
| AMBER ROBERSON | SECRETARY | 0.5 | — |
| BRIAN CARUCCI | TREASURER | 0.5 | — |
| ANNAMARIE HUTTUNEN | DIRECTOR | 0.5 | — |
| KARINE KABUNDI | DIRECTOR | 0.5 | — |
| KRISTIN WHITE | DIRECTOR | 0.5 | — |
| MARK JOSEPH | DIRECTOR | 0.5 | — |
| MATT BLICKLEY | DIRECTOR | 0.5 | — |
| RENEE SNYDER | DIRECTOR | 0.5 | — |
| SCOTT ARANT | DIRECTOR | 0.5 | — |
| SUSAN HEDSTROM | EXECUTIVE DIRECTOR | 35 | $132,351 |
| THERESA STRONG | DIRECTOR OF RESEARCH PROGR | 40 | $173,430 |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with Foundation for Prader-willi on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities