Foundation for Prader-willi logo

Foundation for Prader-willi

COVINA, CA EIN: 31-1763110 Website

TO ELIMINATE THE CHALLENGES OF PRADER WILLI SYNDROME THROUGH THE ADVANCEMENT OF RESEARCH AND THERAPEUTIC DEVELOPMENT.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$8.9M

-6.8% YoY

Annual Giving

$2.6M

+16.5% YoY

Grant Count

20

+25.0% YoY

Avg Grant Size

$130K

-6.8% YoY

About Foundation for Prader-willi

Based on IRS filings

Foundation for Prader-willi is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in COVINA, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $8.9M in total assets. In 2024, it awarded 20 grants totaling $2.6M. Net investment income was $496K.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

25states
+17 more states

Cities

AlbanyAnn ArborAtlantaAuroraBaltimoreBirminghamBlacksburgBostonBronxBrooklynBuffaloCambridgeCharlestonCharlotteChicagoClevelandColombusColumbusDallasDurham

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$2M$4M$5M$7M20202021202220232024
Metric202420232022
Total Assets$8,871,895$9,519,457$8,344,580
Revenue$6,173,660$6,535,580$5,083,937
Expenses$6,062,339$6,352,142$5,088,497
Qualifying Distributions
Net Investment Income$495,956$294,425$83,302
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$700K$1M$2M$3M11 grants202012 grants202124 grants202216 grants202320 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

EMORY UNIVERSITY$300KSAINT LOUIS UNIVERSITY S…$222KALBERT EINSTEIN COLLEGE …$162KDUKE UNIVERSITY$162KROCKEFELLER UNIVERSITY$162KSANFORD BURNHAM PREBYS M…$162KUNIVERSITY OF NEBRASKA$162KYALE UNIVERSITY$162KUNIVERSITY OF PITTSBURGH$162KCARNEGIE MELLON UNIVERSITY$162K

Grant Size Distribution

83 grants across all recorded years

13<$50K20$50–100K46$100–250K4$250–500K$500K–1M$1–5M$5M+

Open Grants

1 open opportunity from Foundation for Prader-willi

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include Emory University ($300,000), Saint Louis University School of Medicine ($222,156), Albert Einstein College of Medicine ($162,000).

RecipientPurposeAmount
EMORY UNIVERSITY ATLANTA, GARESEARCH$300,000
SAINT LOUIS UNIVERSITY SCHOOL OF MEDICINE ST LOUIS, MORESEARCH$222,156
ALBERT EINSTEIN COLLEGE OF MEDICINE BRONX, NYRESEARCH$162,000
DUKE UNIVERSITY CHARLOTTE, NCRESEARCH$162,000
ROCKEFELLER UNIVERSITY NEW YORK, NYRESEARCH$162,000
SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE LA JOLLA, CARESEARCH$162,000
UNIVERSITY OF NEBRASKA LINCOLN, NERESEARCH$162,000
YALE UNIVERSITY NEW HAVEN, CTRESEARCH$162,000
UNIVERSITY OF PITTSBURGH PITTSBURGH, PARESEARCH$161,999
CARNEGIE MELLON UNIVERSITY PITTSBURGH, PARESEARCH$161,998

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

THERESA STRONGDIRECTOR OF RESEARCH PROGR$173KSUSAN HEDSTROMEXECUTIVE DIRECTOR$132K

From 2024 filing

NameTitleHoursCompensation
PAUL WISSMANCHAIRPERSON1
JUSTIN NELSONVICE CHAIRPERSON0.5
AMBER ROBERSONSECRETARY0.5
BRIAN CARUCCITREASURER0.5
ANNAMARIE HUTTUNENDIRECTOR0.5
KARINE KABUNDIDIRECTOR0.5
KRISTIN WHITEDIRECTOR0.5
MARK JOSEPHDIRECTOR0.5
MATT BLICKLEYDIRECTOR0.5
RENEE SNYDERDIRECTOR0.5
SCOTT ARANTDIRECTOR0.5
SUSAN HEDSTROMEXECUTIVE DIRECTOR35$132,351
THERESA STRONGDIRECTOR OF RESEARCH PROGR40$173,430

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is Foundation for Prader-willi?

Foundation for Prader-willi is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in COVINA, CA. It holds $8.9M in total assets as of 2024.

How large is Foundation for Prader-willi?

As of 2024, Foundation for Prader-willi holds $8.9M in total assets with $6.2M in annual revenue. It awarded 20 grants totaling $2.6M in 2024.

Where does Foundation for Prader-willi operate?

Foundation for Prader-willi has awarded grants in Alabama, California, Colorado, Connecticut, Florida, Georgia, Illinois, Indiana, Louisiana, Massachusetts, Maryland, Michigan, Missouri, North Carolina, Nebraska, New Jersey, New York, Ohio, Pennsylvania, South Carolina, Tennessee, Texas, Utah, Virginia, Washington.

What size grants does Foundation for Prader-willi award?

In 2024, Foundation for Prader-willi awarded 20 grants totaling $2.6M — an average of about $130K per grant, based on its IRS Form 990 filings.

What is Foundation for Prader-willi's EIN?

Foundation for Prader-willi's EIN (Employer Identification Number) is 31-1763110. IRS Form 990 filing data is available on this page for 2020–2024.

Explore Open Grants

Browse active grant opportunities in Foundation for Prader-willi's focus areas in our free grants database

Similar Funders

Funders that support many of the same organizations

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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