Epidermolysis Bullosa Medical Research
THE PRIMARY PURPOSE OF THE ORGANIZATION IS TO FUND MEDICAL RESEARCH TO FIND A CURE FOR EPIDERMOLYSIS BULLOSA. EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION FUNDS VARIOUS RESEARCH ORGANIZATIONS ACROSS THE UNITED STATES & INTERNATIONALLY FOR CHILDREN'S HEALTH.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$4.2M
+8.4% YoY
Annual Giving
$322K
+10.6% YoY
Grant Count
5
+66.7% YoY
Avg Grant Size
$64K
-33.7% YoY
About Epidermolysis Bullosa Medical Research
Based on IRS filings
Epidermolysis Bullosa Medical Research is a nonprofit organization, based in LOS ANGELES, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $4.2M in total assets. In 2024, it awarded 5 grants totaling $322K. Net investment income was $151K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $4,182,723 | $3,859,639 | $3,800,076 |
| Revenue | $888,776 | $1,354,120 | $389,920 |
| Expenses | $400,692 | $345,807 | $225,491 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $150,668 | $99,039 | $49,206 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2024
Grant Size Distribution
27 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Regents of the University of Colorado ($223,943), Cincinnati Children's Hospital Medical Center ($66,934), Northwestern University ($13,595).
| Recipient | Purpose | Amount |
|---|---|---|
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER CINCINNATI, OH | RESEARCH | $66,934 |
| COLUMBIA UNIVERSITY NEW YORK, NY | RESEARCH | $9,772 |
| NORTHWESTERN UNIVERSITY EVANSTON, IL | RESEARCH | $13,595 |
| REGENTS OF THE UNIVERSITY OF COLORADO DENVER, CO | RESEARCH | $223,943 |
| TRUSTEES OF COLUMBIA UNIVERSITY NEW YORK, NY | RESEARCH | $7,452 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ANDREA PETT-JOSEPH | PRESIDENT/EXECUTIVE DIRECTOR | 5 | — |
| PAUL JOSEPH | CHIEF FINANCIAL OFFICER | 4 | — |
| MARC GURVITZ | DIRECTOR | 3 | — |
| PERSIA FARDAD-FINN | DIRECTOR | 4 | — |
| LYNN ANDERSON | FOUNDER, PRESIDENT EMERITUS | 1 | — |
Frequently Asked Questions
How large is Epidermolysis Bullosa Medical Research?
As of 2024, Epidermolysis Bullosa Medical Research holds $4.2M in total assets with $889K in annual revenue. It awarded 5 grants totaling $322K in 2024.
Where does Epidermolysis Bullosa Medical Research operate?
Epidermolysis Bullosa Medical Research has awarded grants in Arizona, California, Colorado, Illinois, Indiana, Massachusetts, New York, Ohio, Pennsylvania.
What size grants does Epidermolysis Bullosa Medical Research award?
In 2024, Epidermolysis Bullosa Medical Research awarded 5 grants totaling $322K — an average of about $64K per grant, based on its IRS Form 990 filings.
What is Epidermolysis Bullosa Medical Research's EIN?
Epidermolysis Bullosa Medical Research's EIN (Employer Identification Number) is 94-3130081. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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