Batten Disease Support
OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.
Key facts about Batten Disease Support
- EIN
- 91-1397792
- Latest 990 filing
- Form 990-PF, 2024
- Total assets
- $965,863
Data from IRS Form 990-PF, 2024; updated April 2026.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$966K
-19.7% YoY
Revenue
$602K
-19.3% YoY
Net Investment Income
$36K
+66.2% YoY
Expenses
$967K
+1.6% YoY
About Batten Disease Support
Based on IRS filings
Batten Disease Support is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in GAHANNA, OH. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $966K in total assets. Net investment income was $36K.
Focus Areas
Ready to take the next step with Batten Disease Support?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $965,863 | $1,203,251 | $1,291,125 |
| Revenue | $601,964 | $746,147 | $1,099,485 |
| Expenses | $967,326 | $952,036 | $858,302 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $35,709 | $21,491 | $19,641 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for 2024.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| AMY FENTON PARKER | PRESIDENT & | 40 | $100,000 |
| DARLENE ROYALTY | BOARD CHAIR | 1 | — |
| BARBARA WUEBBELS | BOARD VICE C | 1 | — |
| BARBARA MCDONOUGH | SECRETARY | 1 | — |
| FRED SURREY | TREASURER | 1 | — |
| JOHN IRELAND | DIRECTOR | 1 | — |
| WAYNE KIEFER | DIRECTOR | 1 | — |
| KATE HALLER | DIRECTOR | 1 | — |
| DAVE PEARCE | DIRECTOR | 1 | — |
| SUZETTE JAMES | DIRECTOR | 1 | — |
| FERNANDA LEAL-PARDINAS | DIRECTOR | 1 | — |
| ANTHONY FERRANDINO | DIRECTOR | 1 | — |
| DONNA FOGEL | DIRECTOR | 1 | — |
| JOHN PATTERSON | DIRECTOR | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Batten Disease Support?
Batten Disease Support is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in GAHANNA, OH. It holds $966K in total assets as of 2024.
How large is Batten Disease Support?
As of 2024, Batten Disease Support holds $966K in total assets with $602K in annual revenue.
Where does Batten Disease Support operate?
Batten Disease Support has awarded grants in Missouri, North Carolina, New York.
What is Batten Disease Support's EIN?
Batten Disease Support's EIN (Employer Identification Number) is 91-1397792. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Batten Disease Support's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
Rensselaer Polytechnic Institute
TROY, NY
Assets
$1.7B
Grants
67
Total Given
$8.5M
Fred Hutchinson Cancer Center
SEATTLE, WA
Assets
$3.5B
Grants
143
Total Given
$97.2M
Research Corporation dba Research
TUCSON, AZ
Assets
$241.5M
Grants
165
Total Given
$8.0M
Johns Hopkins University
BALTIMORE, MD
Assets
$23.0B
Grants
757
Total Given
$467.3M
Seattle Children's Hospital
SEATTLE, WA
Assets
$5.6B
Grants
171
Total Given
$43.0M
Thomas Jefferson University
PHILADELPHIA, PA
Assets
$5.1B
Grants
77
Total Given
$11.3M
The Children's Hospital of Philadelphia
PHILADELPHIA, PA
Assets
$8.1B
Grants
170
Total Given
$54.3M
The New York Community Trust
NEW YORK, NY
Assets
$3.5B
Grants
2,748
Total Given
$193.8M
Beth Israel Deaconess Medical Center
CHARLESTOWN, MA
Assets
$3.8B
Grants
162
Total Given
$91.8M
The George Washington University
ASHBURN, VA
Assets
$5.1B
Grants
194
Total Given
$50.5M
University of Chicago
CHICAGO, IL
Assets
$15.0B
Grants
204
Total Given
$95.1M
More Funders in Ohio
Data last updated April 2026. Sourced from IRS Form 990-PF filings.