Ataxia-telangiectasia (A-T) is a genetic disease that causes loss of muscle control and balance, cancer, lung disease and immune system problems in children and young adults, shortening their lives. The nonprofit A-T Children's Project partners with academic and industry investigators worldwide - organizing and supporting innovative research, conferences, clinical team, data platforms and biomarker development - to optimize disease management strategies, develop new treatments and find a cure.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.8M
+31.9% YoY
Annual Giving
$431K
-17.4% YoY
Grant Count
5
-16.7% YoY
Avg Grant Size
$86K
-0.9% YoY
About Ataxia Telangiectasia Children's
Based on IRS filings
Ataxia Telangiectasia Children's is a nonprofit organization focused on Science & Technology, based in COCONUT CREEK, FL. IRS filing data is available from 2021 through 2024. As of 2024, the organization holds $2.8M in total assets. In 2024, it awarded 5 grants totaling $431K. Net investment income was $9K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,802,981 | $2,125,334 | $2,011,038 |
| Revenue | $2,502,362 | $1,567,615 | $1,739,187 |
| Expenses | $1,895,973 | $1,481,299 | $1,713,346 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $9,223 | $4,346 | $2,462 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2024
Grant Size Distribution
22 grants across all recorded years
Open Grants
1 open opportunity from Ataxia Telangiectasia Children's
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Bradley A Margus | President | 20 | — |
| Amy Madison | Vice President | 1 | — |
| Gregory Jehlik | Secretary | 1 | — |
| Timothy Rahall | Treasurer | 3 | — |
| Jennifer Thornton | Executive Director/Director | 50 | $182,079 |
| John Feeley | Director | 1 | — |
| Elizabeth Hughes | Director | 2 | — |
| Robert Middlebrook | Director | 1 | — |
| David Veldink | Director | 1 | — |
| Douglas Weckstein | Director | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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