Ataxia Telangiectasia Children's

COCONUT CREEK, FL EIN: 65-0427215 Website

Ataxia-telangiectasia (A-T) is a genetic disease that causes loss of muscle control and balance, cancer, lung disease and immune system problems in children and young adults, shortening their lives. The nonprofit A-T Children's Project partners with academic and industry investigators worldwide - organizing and supporting innovative research, conferences, clinical team, data platforms and biomarker development - to optimize disease management strategies, develop new treatments and find a cure.

Financial Overview

From 2024 IRS Form 990-PF

Total Assets

$2.8M

+31.9% YoY

Annual Giving

$431K

-17.4% YoY

Grant Count

5

-16.7% YoY

Avg Grant Size

$86K

-0.9% YoY

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Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$688K$1M$2M$3M2021202220232024
Metric202420232022
Total Assets$2,802,981$2,125,334$2,011,038
Revenue$2,502,362$1,567,615$1,739,187
Expenses$1,895,973$1,481,299$1,713,346
Qualifying Distributions
Net Investment Income$9,223$4,346$2,462
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$285K$571K$856K$1M5 grants20216 grants20226 grants20235 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 5 recipients in 2024

The Johns Hopkins Hospital$190KBroad Institute$110KQuanterix$107KUniversity of Pennsylvania$16KForgotten Diseases Found…$7K

Grant Size Distribution

22 grants across all recorded years

7<$50K3$50–100K9$100–250K3$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Who else does Ataxia Telangiectasia Children's fund?

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Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

Jennifer ThorntonExecutive Director/Director$182K

From 2024 filing

NameTitleHoursCompensation
Bradley A MargusPresident20
Amy MadisonVice President1
Gregory JehlikSecretary1
Timothy RahallTreasurer3
Jennifer ThorntonExecutive Director/Director50$182,079
John FeeleyDirector1
Elizabeth HughesDirector2
Robert MiddlebrookDirector1
David VeldinkDirector1
Douglas WecksteinDirector1

Geographic Focus

Where this funder has awarded grants

Grant Distribution by State

5states

Cities

BaltimoreBethesdaBillericaBostonCambridgeMenlo ParkNew YorkPhiladelphiaSanta ClaraWilmington

Data last updated March 2026. Sourced from IRS Form 990-PF filings.

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