Ataxia-telangiectasia (A-T) is a genetic disease that causes loss of muscle control and balance, cancer, lung disease and immune system problems in children and young adults, shortening their lives. The nonprofit A-T Children's Project partners with academic and industry investigators worldwide - organizing and supporting innovative research, conferences, clinical team, data platforms and biomarker development - to optimize disease management strategies, develop new treatments and find a cure.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.8M
+31.9% YoY
Annual Giving
$431K
-17.4% YoY
Grant Count
5
-16.7% YoY
Avg Grant Size
$86K
-0.9% YoY
About Ataxia Telangiectasia Children's
Based on IRS filings
Ataxia Telangiectasia Children's is a nonprofit organization focused on Science & Technology, based in COCONUT CREEK, FL. IRS filing data is available from 2021 through 2024. As of 2024, the organization holds $2.8M in total assets. In 2024, it awarded 5 grants totaling $431K. Net investment income was $9K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,802,981 | $2,125,334 | $2,011,038 |
| Revenue | $2,502,362 | $1,567,615 | $1,739,187 |
| Expenses | $1,895,973 | $1,481,299 | $1,713,346 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $9,223 | $4,346 | $2,462 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2024
Grant Size Distribution
22 grants across all recorded years
Open Grants
1 open opportunity from Ataxia Telangiectasia Children's
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include The Johns Hopkins Hospital ($190,299), Broad Institute ($110,340), Quanterix ($107,279).
| Recipient | Purpose | Amount |
|---|---|---|
| University of Pennsylvania Philadelphia, PA | Medical Research | $15,500 |
| Broad Institute Cambridge, MA | Medical Research | $110,340 |
| Forgotten Diseases Foundation Santa Clara, CA | Medical Research | $7,450 |
| Quanterix Billerica, MA | Medical Research | $107,279 |
| The Johns Hopkins Hospital Baltimore, MD | Medical Research | $190,299 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Bradley A Margus | President | 20 | — |
| Amy Madison | Vice President | 1 | — |
| Gregory Jehlik | Secretary | 1 | — |
| Timothy Rahall | Treasurer | 3 | — |
| Jennifer Thornton | Executive Director/Director | 50 | $182,079 |
| John Feeley | Director | 1 | — |
| Elizabeth Hughes | Director | 2 | — |
| Robert Middlebrook | Director | 1 | — |
| David Veldink | Director | 1 | — |
| Douglas Weckstein | Director | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Ataxia Telangiectasia Children's?
Ataxia Telangiectasia Children's is a nonprofit organization focused on Science & Technology, based in COCONUT CREEK, FL. It holds $2.8M in total assets as of 2024.
How large is Ataxia Telangiectasia Children's?
As of 2024, Ataxia Telangiectasia Children's holds $2.8M in total assets with $2.5M in annual revenue. It awarded 5 grants totaling $431K in 2024.
Where does Ataxia Telangiectasia Children's operate?
Ataxia Telangiectasia Children's has awarded grants in California, Massachusetts, Maryland, New York, Pennsylvania.
What size grants does Ataxia Telangiectasia Children's award?
In 2024, Ataxia Telangiectasia Children's awarded 5 grants totaling $431K — an average of about $86K per grant, based on its IRS Form 990 filings.
What is Ataxia Telangiectasia Children's's EIN?
Ataxia Telangiectasia Children's's EIN (Employer Identification Number) is 65-0427215. IRS Form 990 filing data is available on this page for 2021–2024.
Explore Open Grants
Browse active grant opportunities in Ataxia Telangiectasia Children's's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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