The Leukemia & Lymphoma Societyinc logo

The Leukemia & Lymphoma Societyinc

WASHINGTON, DC EIN: 13-5644916 Website

The Leukemia & Lymphoma Society (now operating as Blood Cancer United) is a 501(c)(3) nonprofit organization headquartered in Washington, DC, with additional offices in Rye Brook, New York. Founded in 1949, the organization is the largest nonprofit funder of blood cancer research globally. The organization employs 1,228 staff members and operates in the United States, Canada, and nine additional countries including the United Kingdom, Argentina, Puerto Rico, and Brazil.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$602.0M

-6.5% YoY

Annual Giving

$52.3M

+8.2% YoY

Grant Count

69

-9.2% YoY

Avg Grant Size

$757K

+19.2% YoY

Research compiled by Grantable AI from public sources. Last updated April 2026.

Mission & Focus Areas

Mission Statement: Cure blood cancer and improve the quality of life of all patients and their families.

The organization operates across three primary strategic areas:

Research Programs: The organization funds groundbreaking blood cancer research across the entire research continuum, from basic laboratory science through clinical trials to private-sector drug development partnerships. The organization has invested over $1.8 billion in research to date and has been instrumental in advancing 75% of nearly 100 new blood cancer treatment approvals over the past five years. Current research priorities include precision medicine, immunotherapy, and investigation of links between mutations and blood cancer. The organization has supported notable advances including Chimeric Antigen Receptor T cell (CAR T) therapy, which has produced cures for some patients who have exhausted other treatment options.

Policy & Advocacy: The organization's Policy & Advocacy team works to remove barriers to care through grassroots mobilization and advocacy to influence state and federal laws and regulations. The team focuses on ensuring all blood cancer patients have access to needed treatments and care.

Patient Support & Services: The organization provides disease information, treatment resources, support services, and educational resources for patients and families affected by blood cancer.

Grantmaking

The organization has committed significant funding to research initiatives:

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Geographic Focus

Where this funder awards grants

The organization funds research and provides services in the United States and internationally, including Canada, the United Kingdom, Argentina, Puerto Rico, Brazil, and nine additional countries.

Grant Distribution by State

31states
+23 more states

Cities

AtlantaAuroraAustinBaltimoreBar HarborBirminghamBostonBronxBryanCambridgeCarol StreamCaryChapel HillCharlotteCharlottesvilleChicagoChicagpCincinattiClevelandColton

Financial History

Multi-year comparison from IRS filings

Fiscal Year 2024:

  • Total Revenue: $368,242,059
  • Total Expenses: $371,792,172
  • Total Assets: $602,010,519
  • Total Liabilities: $211,000,000

Tax Status: Tax-exempt since January 2001 (EIN: 13-5644916)

Organizational Rating: The organization holds a Four-Star rating from independent charity evaluators, with a 99% overall score based on Impact & Measurement (47%), Accountability & Finance (38%), Leadership & Adaptability (10%), and Culture & Community (5%).

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$143M$285M$428M$570M20202021202220232024
Metric202420232022
Total Assets$602,010,519$643,891,871$693,676,206
Revenue$368,242,059$378,338,490$426,997,204
Expenses$371,792,172$386,072,968$518,622,394
Qualifying Distributions
Net Investment Income$16,623,882$15,134,480$6,919,696
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$13M$26M$39M$52M74 grants202072 grants202174 grants202276 grants202369 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

DANA-FARBER CANCER INSTI…$4.7MDREN BIO$3.2MTHE BOARD OF TRUSTEES OF…$2.5MJOAN & SANFORD I WEILL M…$2.4MSLOAN KETTERING INSTITUT…$2.2MH LEE MOFFITT CANCER CEN…$2.1MEMORY UNIVERSITY$1.6MFRED HUTCHINSON CANCER C…$1.4MST JUDE CHILDREN'S RESEA…$1.3MCOLUMBIA UNIVERSITY MEDI…$1.2M

Grant Size Distribution

250 grants across all recorded years

19<$50K28$50–100K67$100–250K45$250–500K40$500K–1M50$1–5M1$5M+

Open Grants

6 open opportunities from The Leukemia & Lymphoma Societyinc

Show all 6 →

Giving History

Grant recipients and amounts by year

No grants recorded for .

Leadership & Key People

Leadership team and compensation from IRS filings

E. Anders Kolb, M.D. - President & CEO

Louis J. DeGennaro - President and CEO (referenced in organizational materials regarding the Four-Star rating achievement)

Compensation Overview

From 2024 IRS filing

LOUIS JDEGENNARO-END…PRESIDENT & CEO - FORMER$1.4MGWEN NICHOLSEVP, CHIEF MEDICAL OFC$526KTROY DUNMIREEVP, CHIEF OPERATING OFC$511KDALE NISSENBAUMEVP, GENERAL COUNSEL$497KE ANDERS KOLB - STAR…PRESIDENT & CEO$472KGORDON MILLER JREVP, CHIEF FINANCIAL OFC$453KCOKER POWELLSVP, CHIEF DEVELOPMENT OFC$389KSUSAN BROWNSVP, CHIEF DEI OFC$383KVANESSA WHITESVP, CHIEF ADVANCEMENT OFC$380KLEE GREENBERGERSVP, CHIEF SCIENTIFIC OFC$377KFLORENCE GODFREYSVP, CHIEF EXPERIENCE OFC$341K

From 2024 filing

NameTitleHoursCompensation
JEFF SACHSCHAIR4
KATHLEEN MERIWETHERVICE CHAIR4
FREDA WANGSECRETARY/TREASURER4
JANICE GABRILOVE MDAT LARGE4
LEROY BALLBOD MEMBER4
RICHARD BAGGERBOD MEMBER4
MARK BAEEENECHEABOD MEMBER4
RENZO CANETTA MDBOD MEMBER4
CASEY CUNNINGHAM MDBOD MEMBER4
HELEN HESLOPBOD MEMBER4
ARI MELNICKBOD MEMBER4
RUBEN MESABOD MEMBER4
LYNNE O'BRIENBOD MEMBER4
MARLA PERSKYBOD MEMBER4
JIM REDDOCHBOD MEMBER4
RICHARD RENDINABOD MEMBER4
ROBERT ROSENBOD MEMBER4
BART SICHELBOD MEMBER4
ALESSANDRA TOCCOBOD MEMBER4
YVETTE TREMONTIBOD MEMBER4
E ANDERS KOLB - START 512023PRESIDENT & CEO40$471,613
GWEN NICHOLSEVP, CHIEF MEDICAL OFC40$526,284
TROY DUNMIREEVP, CHIEF OPERATING OFC40$510,557
DALE NISSENBAUMEVP, GENERAL COUNSEL40$497,291
GORDON MILLER JREVP, CHIEF FINANCIAL OFC40$453,172
COKER POWELLSVP, CHIEF DEVELOPMENT OFC40$388,870
VANESSA WHITESVP, CHIEF ADVANCEMENT OFC40$380,333
SUSAN BROWNSVP, CHIEF DEI OFC40$382,991
LEE GREENBERGERSVP, CHIEF SCIENTIFIC OFC40$377,058
FLORENCE GODFREYSVP, CHIEF EXPERIENCE OFC40$341,009
LOUIS JDEGENNARO-END 63023PRESIDENT & CEO - FORMER40$1,358,093

Recent News & Activity

Recent developments and announcements

The organization has announced multiple significant research funding commitments and partnerships:

Awarded $65 million in new funding for blood cancer research

The Leukemia & Lymphoma Society Awards $65 Million in New Funding for Blood

Committed $188 million to fuel next generation of cancer research

LLS Fuels Next Generation of Cancer Research Committing $188 Million

Partnered with Blood Cancer UK to award $4.25 million for research into prevention of leukemia

The Leukemia & Lymphoma Society Awards $65 Million in New Funding for Blood

Invested $6.5 million in research investigating causes of inequitable access to blood cancer treatment and care

The Leukemia & Lymphoma Society Awards $65 Million in New Funding for Blood

Funded immunotherapy studies demonstrating remarkable results in patients with acute lymphoblastic leukemia

Immunotherapy Study Funded by The Leukemia & Lymphoma Society Demonstrates

The organization maintains active engagement in policy advocacy and continues to expand research initiatives focused on precision medicine, immunotherapy, and addressing health disparities in blood cancer treatment and clinical trial participation.

LLS Fuels Next Generation of Cancer Research Committing $188 Million

Subject Areas

Focus areas based on grantmaking activity

Data last updated April 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.

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