The International Waldenstrom's
MISSION OBJECTIVES: (A) OFFER SUPPORT AND ENCOURAGEMENT TO THE WALDENSTROM'S MACROGLOBULINEMIA COMMUNITY AND OTHERS WITH AN INTEREST IN THE DISEASE, (B) TO PROVIDE INFORMATION AND EDUCATIONAL PROGRAMS THAT ADDRESS PATIENTS AND CAREGIVERS' CONCERNS AND (C) TO PROVIDE AND SUPPORT RESEARCH LEADING TO BETTER TREATMENTS AND ULTIMATELY A CURE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$7.5M
-10.3% YoY
Annual Giving
$2.1M
+61.3% YoY
Grant Count
6
+0.0% YoY
Avg Grant Size
$357K
+61.3% YoY
About The International Waldenstrom's
Based on IRS filings
The International Waldenstrom's is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in SARASOTA, FL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $7.5M in total assets. In 2024, it awarded 6 grants totaling $2.1M. Net investment income was $305K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $7,467,490 | $8,329,477 | $9,055,891 |
| Revenue | $4,463,374 | $3,292,131 | $4,169,452 |
| Expenses | $5,497,731 | $4,066,709 | $2,555,918 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $305,481 | $226,174 | $30,904 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2024
Grant Size Distribution
29 grants across all recorded years
Open Grants
12 open opportunities from The International Waldenstrom's
2026 Research Request for Proposals (RFP)
THE INTERNATIONAL WALDENSTROM'S
Amount
$250,000 - $1,000,000 over 2-4 years
Deadline
Rolling / Open
Companion Grant
THE INTERNATIONAL WALDENSTROM'S
Amount
$120,000 total
Deadline
Rolling / Open
Enhanced Roadmap Grant
THE INTERNATIONAL WALDENSTROM'S
Amount
$1,500,000 total
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Dana Farber Cancer Institute ($1,262,440), Mayo Clinic ($421,489), Nyu School of Medicine ($320,000).
| Recipient | Purpose | Amount |
|---|---|---|
| DANA FARBER CANCER INSTITUTE BOSTON, MA | RESEARCH | $1,262,440 |
| MAYO CLINIC MINEAPOLIS, MN | RESEARCH | $421,489 |
| NYU SCHOOL OF MEDICINE BOSTON, MA | RESEARCH | $320,000 |
| THE OHIO STATE UNIVERSITY COLUMBUS, OH | RESEARCH | $79,950 |
| UNIVERSITY OF CA SAN DIEGO LA JOLLA, CA | RESEARCH | $30,000 |
| MEMORIAL SLOAN-KETTERING CANCER CENTER NEW YORK, NY | RESEARCH | $30,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| STEPHEN ANSELL MD PHD | TRUSTEE | 15 | — |
| GLENN CANTOR DVM PHD | TRUSTEE | 15 | — |
| SHIRLEY GANSE | TRUSTEE | 15 | — |
| CAROL WELSH GRAY | TRUSTEE | 15 | — |
| MEG MANGIN | TRUSTEE | 15 | — |
| LINDA NELSON | TRUSTEE | 15 | — |
| SAURABH SEROO | TRUSTEE | 15 | — |
| ROBERT PERRY | TRUSTEE | 15 | — |
| CRAIG PRIZANT | TRUSTEE | 15 | — |
| DAVID SCHNELL | TRUSTEE | 15 | — |
| EILEEN SULLIVAN | TRUSTEE | 15 | — |
| JOHN ZIMMERMAN | TRUSTEE | 15 | — |
| PAUL KITCHEN | CHAIRMAN | 30 | — |
| CARL HARRINGTON | VICE-CHAIR FUNDRAISING | 15 | — |
| THOMAS HOFFMAN MD | VICE-CHAIR RESEARCH | 15 | — |
| LISA WISE | VICE-CHAIR INFO & SUPPORT | 15 | — |
| CARL LISMAN | SECRETARY/TREASURER | 15 | — |
| LOUIE NEWTON GUERIN | PRESIDENT/CEO | 40 | $156,951 |
| ANNETTE PRESTON | DIR. OF DEVELOPMENT | 40 | $111,145 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is The International Waldenstrom's?
The International Waldenstrom's is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in SARASOTA, FL. It holds $7.5M in total assets as of 2024.
How large is The International Waldenstrom's?
As of 2024, The International Waldenstrom's holds $7.5M in total assets with $4.5M in annual revenue. It awarded 6 grants totaling $2.1M in 2024.
Where does The International Waldenstrom's operate?
The International Waldenstrom's has awarded grants in California, Massachusetts, Minnesota, New Hampshire, New York, Ohio, Texas.
What size grants does The International Waldenstrom's award?
In 2024, The International Waldenstrom's awarded 6 grants totaling $2.1M — an average of about $357K per grant, based on its IRS Form 990 filings.
What is The International Waldenstrom's's EIN?
The International Waldenstrom's's EIN (Employer Identification Number) is 54-1784426. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in The International Waldenstrom's's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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