The International Waldenstrom's
MISSION OBJECTIVES: (A) OFFER SUPPORT AND ENCOURAGEMENT TO THE WALDENSTROM'S MACROGLOBULINEMIA COMMUNITY AND OTHERS WITH AN INTEREST IN THE DISEASE, (B) TO PROVIDE INFORMATION AND EDUCATIONAL PROGRAMS THAT ADDRESS PATIENTS AND CAREGIVERS' CONCERNS AND (C) TO PROVIDE AND SUPPORT RESEARCH LEADING TO BETTER TREATMENTS AND ULTIMATELY A CURE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$7.5M
-10.3% YoY
Annual Giving
$2.1M
+61.3% YoY
Grant Count
6
+0.0% YoY
Avg Grant Size
$357K
+61.3% YoY
About The International Waldenstrom's
Based on IRS filings
The International Waldenstrom's is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in SARASOTA, FL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $7.5M in total assets. In 2024, it awarded 6 grants totaling $2.1M. Net investment income was $305K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $7,467,490 | $8,329,477 | $9,055,891 |
| Revenue | $4,463,374 | $3,292,131 | $4,169,452 |
| Expenses | $5,497,731 | $4,066,709 | $2,555,918 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $305,481 | $226,174 | $30,904 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2024
Grant Size Distribution
29 grants across all recorded years
Open Grants
12 open opportunities from The International Waldenstrom's
2026 Research Request for Proposals (RFP)
THE INTERNATIONAL WALDENSTROM'S
Amount
$250,000 - $1,000,000 over 2-4 years
Deadline
Rolling / Open
Companion Grant
THE INTERNATIONAL WALDENSTROM'S
Amount
$120,000 total
Deadline
Rolling / Open
Enhanced Roadmap Grant
THE INTERNATIONAL WALDENSTROM'S
Amount
$1,500,000 total
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| STEPHEN ANSELL MD PHD | TRUSTEE | 15 | — |
| GLENN CANTOR DVM PHD | TRUSTEE | 15 | — |
| SHIRLEY GANSE | TRUSTEE | 15 | — |
| CAROL WELSH GRAY | TRUSTEE | 15 | — |
| MEG MANGIN | TRUSTEE | 15 | — |
| LINDA NELSON | TRUSTEE | 15 | — |
| SAURABH SEROO | TRUSTEE | 15 | — |
| ROBERT PERRY | TRUSTEE | 15 | — |
| CRAIG PRIZANT | TRUSTEE | 15 | — |
| DAVID SCHNELL | TRUSTEE | 15 | — |
| EILEEN SULLIVAN | TRUSTEE | 15 | — |
| JOHN ZIMMERMAN | TRUSTEE | 15 | — |
| PAUL KITCHEN | CHAIRMAN | 30 | — |
| CARL HARRINGTON | VICE-CHAIR FUNDRAISING | 15 | — |
| THOMAS HOFFMAN MD | VICE-CHAIR RESEARCH | 15 | — |
| LISA WISE | VICE-CHAIR INFO & SUPPORT | 15 | — |
| CARL LISMAN | SECRETARY/TREASURER | 15 | — |
| LOUIE NEWTON GUERIN | PRESIDENT/CEO | 40 | $156,951 |
| ANNETTE PRESTON | DIR. OF DEVELOPMENT | 40 | $111,145 |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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