The Adenoid Cystic Carcinoma Research

NEEDHAM, MA EIN: 20-6745475 Website

THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION (ACCRF) SUPPORTS RESEARCH INTO ADENOID CYSTIC CARCINOMA THAT WILL ACCELERATE THE DEVELOPMENT OF IMPROVED THERAPIES AND A CURE FOR THE DISEASE.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$2.3M

-16.3% YoY

Annual Giving

$417K

+137.3% YoY

Grant Count

+100.0% YoY

Avg Grant Size

$52K

+18.6% YoY

About The Adenoid Cystic Carcinoma Research

Based on IRS filings

The Adenoid Cystic Carcinoma Research is a nonprofit organization focused on Medical Research, based in NEEDHAM, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.3M in total assets. In 2024, it awarded 8 grants totaling $417K. Net investment income was $97K.

Focus Areas

Medical Research

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

Massachusetts $751K (35%)

Texas $369K (17%)

Illinois $342K (16%)

Maryland $125K (6%)

New Mexico $107K (5%)

California $100K (5%)

Pennsylvania $75K (4%)

Florida $75K (4%)

+5 more states

States

California Florida Illinois Massachusetts Maryland Michigan New Jersey New Mexico New York Pennsylvania Tennessee Texas Virginia

Cities

AlbuquerqueAnn ArborBaltimoreBostonChicagoCoral GablesHoustonMemphisMission ViejoNew BrunswickNew YorkPhiladelphiaRichmondTampa

Financial History

Multi-year comparison from IRS filings

Revenue

Expenses

Qualifying Distributions

Net Investment Income

Metric	2024	2023	2022
Total Assets	$2,251,893	$2,690,770	$2,659,707
Revenue	$1,146,195	$1,893,545	$1,386,655
Expenses	$1,458,198	$1,872,720	$1,618,196
Qualifying Distributions	—	—	—
Net Investment Income	$96,890	$90,836	$27,583
Distributable Amount	—	—	—

Giving Over Time

Total grant dollars and number of grants per year

Grant Insights

How this funder distributes its grants

Top Recipients

Top 8 recipients in 2024

Grant Size Distribution

34 grants across all recorded years

Open Grants

2 open opportunities from The Adenoid Cystic Carcinoma Research

Foundation

Grant Opportunities (General Research Grants)

THE ADENOID CYSTIC CARCINOMA RESEARCH

Amount

$100,000 - $300,000 (typical; historic maximum $600,000)

Deadline

Rolling / Open

Rolling (Quarterly)

Foundation

Kara Gelb Memorial Grant

THE ADENOID CYSTIC CARCINOMA RESEARCH

Amount

Varies

Deadline

Rolling / Open

Annual

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include Mission Viejo Hospital and Ucla ($100,000), Dana Farber Cancer Institute ($50,000), Md Anderson Cancer Center ($50,000).

Recipient	Purpose	Amount
BAYLOR COLLEGE OF MEDICINE HOUSTON, TX	ADENOID CYSTIC CARCINOMA ARISING AT NON-SALIVARY SITES IN THE U.S.- A PROPOSAL FOR ANALYSIS OF TWO NATIONAL CANCER DATASETS.	$36,768
MISSION VIEJO HOSPITAL AND UCLA MISSION VIEJO, CA	CT-GUIDED LDR BRACHYTHERAPY FOR ADENOID CYSTIC CARCINOMA LUNG METASTASES: EFFICACY AND SAFETY OUTCOMES.	$100,000
DANA FARBER CANCER INSTITUTE BOSTON, MA	STEREOTACTIC BODY RADIOTHERAPY (SBRT) FOR EARLY TREATMENT OF OLIGOMETASTATIC ADENOID CYSTIC CARCINOMA: THE SOLAR TRIAL	$50,000
VIRGINA COMMONWEALTH UNIVERSITY OF MEDICINE RICHMOND, VA	TO STUDY THE EXPRESSION OF FLOWER-WIN AND FLOWER-LOSE IN ADENOID CYSTIC CARCINOMA (ACC)	$49,989
MD ANDERSON CANCER CENTER HOUSTON, TX	VEGFR INHIBITORS IN ADENOID CYSTIC CARCINOMA	$50,000
H LEE MOFFITT CANCER CENTER & RESEARCH INSTITUTE INC TAMPA, FL	MOLECULAR CHARACTERIZATION OF THE SALIVARY ADENOID CYSTIC CARCINOMA TUMOR IMMUNE LANDSCAPE BY ANATOMIC SUBSITE	$49,999
MASS GENERAL BOSTON, MA	CHEMICAL PROTEOMICS TO TARGET MYB IN ACC	$50,000
RUTGERS CANCER INSTITUTE NEW BRUNSWICK, NJ	PATTERNS OF CARE IN THE MANAGEMENT OF PATIENTS WITH ADENOID CYSTIC CARCINOMA OF THE BREAST	$30,569

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

From 2024 filing

Name	Title	Hours	Compensation
JEFFREY A KAUFMAN	EXECUTIVE DIRECTOR/BOARD C	50	$150,000
THOMAS DILENGE	BOARD VICE CHAIR	5	—
RALPH MOLLIS	TREASURER	5	—
MARNIE A KAUFMAN	DIRECTOR & CFO	35	—
ELIZABETH WEHLAGE	DIRECTOR	5	—
DAVID MORSE	DIRECTOR	5	—
BOZHO TODORICH	DIRECTOR	5	—
EMMA KINLOCH	DIRECTOR	5	—
NICOLE SPARDY BURR	DIRECTOR OF RESEARCH	40	$142,500

Subject Areas

Focus areas based on grantmaking activity

Medical Research

Frequently Asked Questions

What is The Adenoid Cystic Carcinoma Research?

The Adenoid Cystic Carcinoma Research is a nonprofit organization focused on Medical Research, based in NEEDHAM, MA. It holds $2.3M in total assets as of 2024.

How large is The Adenoid Cystic Carcinoma Research?

As of 2024, The Adenoid Cystic Carcinoma Research holds $2.3M in total assets with $1.1M in annual revenue. It awarded 8 grants totaling $417K in 2024.

Where does The Adenoid Cystic Carcinoma Research operate?

The Adenoid Cystic Carcinoma Research has awarded grants in California, Florida, Illinois, Massachusetts, Maryland, Michigan, New Jersey, New Mexico, New York, Pennsylvania, Tennessee, Texas, Virginia.

What size grants does The Adenoid Cystic Carcinoma Research award?

In 2024, The Adenoid Cystic Carcinoma Research awarded 8 grants totaling $417K — an average of about $52K per grant, based on its IRS Form 990 filings.

What is The Adenoid Cystic Carcinoma Research's EIN?

The Adenoid Cystic Carcinoma Research's EIN (Employer Identification Number) is 20-6745475. IRS Form 990 filing data is available on this page for 2020–2024.