Les Turner Amyotrophic
TO PROVIDE THE MOST COMPREHENSIVE CARE AND SUPPORT TO PEOPLE LIVING WITH ALS AND THEIR FAMILIES IN CHICAGOLAND, SO THEY CAN CONFIDENTLY NAVIGATE THE DISEASE, AND ADVANCE SCIENTIFIC RESEARCH FOR THE PREVENTION, TREATMENT AND CURE OF ALS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$4.4M
+34.3% YoY
Annual Giving
$1.1M
-7.5% YoY
Grant Count
4
+0.0% YoY
Avg Grant Size
$282K
-7.5% YoY
About Les Turner Amyotrophic
Based on IRS filings
Les Turner Amyotrophic is a nonprofit organization, based in SKOKIE, IL. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $4.4M in total assets. In 2024, it awarded 4 grants totaling $1.1M. Net investment income was $107K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $4,414,309 | $3,286,760 | $3,764,134 |
| Revenue | $4,524,784 | $2,682,408 | $2,660,033 |
| Expenses | $3,333,281 | $3,355,940 | $2,786,124 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $107,409 | $102,365 | $28,645 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
18 grants across all recorded years
Open Grants
1 open opportunity from Les Turner Amyotrophic
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Northwestern University Feinberg School of Medicine ($700,000), Lois Insolia Als Clinic ($300,000), Northwestern University Feinberg School of Medicine ($100,000).
| Recipient | Purpose | Amount |
|---|---|---|
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINE CHICAGO, IL | RESEARCH TO FIND A CURE | $700,000 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINE CHICAGO, IL | EDUCATION | $26,959 |
| NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINE CHICAGO, IL | ENDOWMENT FOR ALS RESEARCH AND PATIENT CENTER | $100,000 |
| LOIS INSOLIA ALS CLINIC CHICAGO, IL | CLINIC FOR THE THERAPY OF ALS PATIENTS | $300,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ERIN REARDON COHN | BOARD CHAIR | 2 | — |
| HARVEY GAFFEN | CHAIR EMERITUS | 2 | — |
| THOMAS F BOLEKY | VICE CHAIR | 2 | — |
| JOEL A SCHECHTER | VICE CHAIR | 2 | — |
| JOHN COLEMAN III MD | VICE CHAIR | 2 | — |
| ROBIN FERN | VICE CHAIR | 2 | — |
| DEBORAH CROCKETT | TREASURER | 2 | — |
| TINA CASCIO | DIRECTOR | 2 | — |
| AALOK DAVE | DIRECTOR | 2 | — |
| SEAN FALLON | DIRECTOR | 2 | — |
| BONNY GAFFEN | DIRECTOR | 2 | — |
| FRANK GRANATA | DIRECTOR | 2 | — |
| JODI M HARRIS | DIRECTOR | 2 | — |
| KEN HOFFMAN | DIRECTOR | 2 | — |
| JANENE JONAS | DIRECTOR | 2 | — |
| JOSHUA NEWSOME | DIRECTOR | 2 | — |
| MARY LOU PISONE | DIRECTOR | 2 | — |
| DIANA PISONE | DIRECTOR | 2 | — |
| SARVESH SOI | DIRECTOR | 2 | — |
| LAURA FREVELETTI | CHIEF EXECUTIVE OFFICER | 40 | $191,209 |
| MARK HEIDEN | DIRECTOR OF COMMUNICATIONS | 40 | $127,500 |
| LAUREN WEBB | CHIEF ADVOCACY AND OUTREACH OFFICER | 40 | $120,634 |
| CONSTANCE PAESEL | CHIEF OPERATIONS OFFICER | 40 | $113,500 |
Frequently Asked Questions
How large is Les Turner Amyotrophic?
As of 2024, Les Turner Amyotrophic holds $4.4M in total assets with $4.5M in annual revenue. It awarded 4 grants totaling $1.1M in 2024.
Where does Les Turner Amyotrophic operate?
Les Turner Amyotrophic has awarded grants in Illinois.
What size grants does Les Turner Amyotrophic award?
In 2024, Les Turner Amyotrophic awarded 4 grants totaling $1.1M — an average of about $282K per grant, based on its IRS Form 990 filings.
What is Les Turner Amyotrophic's EIN?
Les Turner Amyotrophic's EIN (Employer Identification Number) is 36-2916466. IRS Form 990 filing data is available on this page for 2019–2024.
Explore Open Grants
Browse active grant opportunities in Les Turner Amyotrophic's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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