TO DISCOVER NEW TREATMENTS AND CURES FOR PATIENTS WITH FAMILIAL DYSAUTONOMIA, A RARE, FATAL, GENETIC NEUROLOGICAL DISEASE PRESENT AT BIRTH
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$1.1M
+5.7% YoY
Annual Giving
$176K
-1.6% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$176K
-1.6% YoY
About Familial Dysautonomia Now Foundation
Based on IRS filings
Familial Dysautonomia Now Foundation is a nonprofit organization focused on Medical Research, based in BUFFALO GROVE, IL. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $1.1M in total assets. In 2025, it awarded 1 grants totaling $176K. Net investment income was $44K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $1,146,133 | $1,084,316 | $1,031,053 |
| Revenue | $289,025 | $298,955 | $363,863 |
| Expenses | $233,939 | $235,102 | $226,852 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $44,207 | $54,373 | $8,242 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2025
Grant Size Distribution
5 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2025 grants, the largest include fordham university ($176,400).
| Recipient | Purpose | Amount |
|---|---|---|
| fordham university bronx, NY | lab for fd research | $176,400 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ANN SLAW JD | PRESIDENT | 40 | — |
| KEN SLAW PHD | VICE PRESIDENT | 4 | — |
| ANDREA GREENFIELD | TREASURER | 4 | — |
| RUTH WOODRUFF JD | ADVISORY BOARD | 1 | — |
| TARA D SCHIMMEL MS ED | NY REGIONAL REPRESENTATIVE | 1 | — |
| CAROL ALTERMAN RN | fl regional representative | 1 | — |
| pat white | advisory board | 1 | — |
| Terry finesmith horwich jd | aDVISORY BOARD | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Familial Dysautonomia Now Foundation?
Familial Dysautonomia Now Foundation is a nonprofit organization focused on Medical Research, based in BUFFALO GROVE, IL. It holds $1.1M in total assets as of 2025.
How large is Familial Dysautonomia Now Foundation?
As of 2025, Familial Dysautonomia Now Foundation holds $1.1M in total assets with $289K in annual revenue. It awarded 1 grants totaling $176K in 2025.
Where does Familial Dysautonomia Now Foundation operate?
Familial Dysautonomia Now Foundation has awarded grants in New York.
What size grants does Familial Dysautonomia Now Foundation award?
In 2025, Familial Dysautonomia Now Foundation awarded 1 grants totaling $176K — an average of about $176K per grant, based on its IRS Form 990 filings.
What is Familial Dysautonomia Now Foundation's EIN?
Familial Dysautonomia Now Foundation's EIN (Employer Identification Number) is 26-3531031. IRS Form 990 filing data is available on this page for 2020–2025.
Explore Open Grants
Browse active grant opportunities in Familial Dysautonomia Now Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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