TO DISCOVER NEW TREATMENTS AND CURES FOR PATIENTS WITH FAMILIAL DYSAUTONOMIA, A RARE, FATAL, GENETIC NEUROLOGICAL DISEASE PRESENT AT BIRTH
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$1.1M
+5.7% YoY
Annual Giving
$176K
-1.6% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$176K
-1.6% YoY
About Familial Dysautonomia Now Foundation
Based on IRS filings
Familial Dysautonomia Now Foundation is a nonprofit organization focused on Medical Research, based in BUFFALO GROVE, IL. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $1.1M in total assets. In 2025, it awarded 1 grants totaling $176K. Net investment income was $44K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $1,146,133 | $1,084,316 | $1,031,053 |
| Revenue | $289,025 | $298,955 | $363,863 |
| Expenses | $233,939 | $235,102 | $226,852 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $44,207 | $54,373 | $8,242 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2025
Grant Size Distribution
5 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ANN SLAW JD | PRESIDENT | 40 | — |
| KEN SLAW PHD | VICE PRESIDENT | 4 | — |
| ANDREA GREENFIELD | TREASURER | 4 | — |
| RUTH WOODRUFF JD | ADVISORY BOARD | 1 | — |
| TARA D SCHIMMEL MS ED | NY REGIONAL REPRESENTATIVE | 1 | — |
| CAROL ALTERMAN RN | fl regional representative | 1 | — |
| pat white | advisory board | 1 | — |
| Terry finesmith horwich jd | aDVISORY BOARD | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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