TO ENCOURAGE AND SUPPORT RESEARCH IN INCONTINENTIA PIGMENTOSA AND TO PROVIDE FAMILY SUPPORT AND EDUCATION.
Financial Overview
From 2022 IRS Form 990-PF · View filing
Total Assets
—
-100.0% YoY
Annual Giving
$103K
+158.2% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$103K
+158.2% YoY
About Incontinentia Pigmenti International
Based on IRS filings
Incontinentia Pigmenti International is a nonprofit organization focused on Education, based in NEW YORK, NY. IRS filing data is available from 2020 through 2022. In 2022, it awarded 1 grants totaling $103K.
Focus Areas
Ready to take the next step with Incontinentia Pigmenti International?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2022 | 2021 | 2020 |
|---|---|---|---|
| Total Assets | — | $126,533 | $338,485 |
| Revenue | $840 | $164,151 | $22,448 |
| Expenses | $127,373 | $408,751 | $89,772 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | — | $3,339 | $18,806 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2022
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2022 grants, the largest include National Fndn Ectodermal Dysp ($103,265).
| Recipient | Purpose | Amount |
|---|---|---|
| NATIONAL FNDN ECTODERMAL DYSP FAIRVIEW HEIGHT, IL | MEDICAL RESEARCH/ SUPPORT OF IPIF | $103,265 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2022 IRS filing
From 2022 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| SUSANNE EMMERICH | PRES/TREAS | — | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Incontinentia Pigmenti International?
Incontinentia Pigmenti International is a nonprofit organization focused on Education, based in NEW YORK, NY. It holds — in total assets as of 2022.
Where does Incontinentia Pigmenti International operate?
Incontinentia Pigmenti International has awarded grants in Illinois.
What size grants does Incontinentia Pigmenti International award?
In 2022, Incontinentia Pigmenti International awarded 1 grants totaling $103K — an average of about $103K per grant, based on its IRS Form 990 filings.
What is Incontinentia Pigmenti International's EIN?
Incontinentia Pigmenti International's EIN (Employer Identification Number) is 13-3810181. IRS Form 990 filing data is available on this page for 2020–2022.
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Browse active grant opportunities in Incontinentia Pigmenti International's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.