Families and Friends Supporting Cystic
FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE, INC. IS AN ORGANIZATION COMMITTED TO ENHANCING THE QUALITY OF LIFE OF CYSTIC FIBROSIS PATIENTS WHILE THEY AWAIT A CURE. THE ORGANIZATION ACCOMPLISHES THIS BY SUPPORTING AND ENDEAVORING TO IMPROVE THE SPECIAL PROGRAMS AVAILABLE FOR PATIENTS.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$1.9M
-5.6% YoY
Annual Giving
$250K
+0.0% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$250K
+0.0% YoY
About Families and Friends Supporting Cystic
Based on IRS filings
Families and Friends Supporting Cystic is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. IRS filing data is available from 2022 through 2025. As of 2025, the organization holds $1.9M in total assets. In 2025, it awarded 1 grants totaling $250K. Net investment income was $64K.
Focus Areas
Ready to take the next step with Families and Friends Supporting Cystic?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $1,947,402 | $2,062,361 | $1,901,654 |
| Revenue | $194,150 | $497,707 | $817,705 |
| Expenses | $327,957 | $354,917 | $755,393 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $64,169 | $15,320 | $37,229 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2025
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2025 grants, the largest include Northwell Health Foundation ($250,000).
| Recipient | Purpose | Amount |
|---|---|---|
| NORTHWELL HEALTH FOUNDATION WESTBURY, NY | TO ASSIST WITH THE OPERATING COSTS OF A CYSTIC FIBROSIS CENTER AT LENOX HILL HOSPITAL IN NEW YORK THAT ENDEAVORS TO ENHANCE THE QUALITY OF LIFE OF CYSTIC FIBROSIS PATIENTS. | $250,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| GWEN M ENGELHARD DDS | PRESIDENT | — | — |
| JILL DALTON | CHIEF FINANCIAL OFFICER | — | — |
| JOHN Z JACOBY | PRESIDENT EMERITUS/SECRETA | — | — |
| MARNEE MCCARTHY | ASSISTANT SECRETARY | — | — |
| KAITLYN CHENEY | DIRECTOR | — | — |
| ROBERT M HUTCHINSON | DIRECTOR | — | — |
| SEAN MCCOOE | DIRECTOR | — | — |
| JUDY NANCE | DIRECTOR | — | — |
| LUMI CASTLEN | DIRECTOR | — | — |
| MELISSA ARGENIO | DIRECTOR | — | — |
| DAVID SHEPHERD | DIRECTOR | — | — |
| THOMAS G LEAHY | VICE PRESIDENT | — | — |
| ROSE MARIE MANGER | DIRECTOR | — | — |
| MELISSA SMITH | DIRECTOR | — | — |
| LISA TROYANO-ASCOLESE | DIRECTOR | — | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Families and Friends Supporting Cystic?
Families and Friends Supporting Cystic is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. It holds $1.9M in total assets as of 2025.
How large is Families and Friends Supporting Cystic?
As of 2025, Families and Friends Supporting Cystic holds $1.9M in total assets with $194K in annual revenue. It awarded 1 grants totaling $250K in 2025.
Where does Families and Friends Supporting Cystic operate?
Families and Friends Supporting Cystic has awarded grants in New York.
What size grants does Families and Friends Supporting Cystic award?
In 2025, Families and Friends Supporting Cystic awarded 1 grants totaling $250K — an average of about $250K per grant, based on its IRS Form 990 filings.
What is Families and Friends Supporting Cystic's EIN?
Families and Friends Supporting Cystic's EIN (Employer Identification Number) is 13-4166186. IRS Form 990 filing data is available on this page for 2022–2025.
Explore Open Grants
Browse active grant opportunities in Families and Friends Supporting Cystic's focus areas in our free grants database
Related Funders
Similar funders by location and focus area
The Reich Family Charitable Trust
BROOKLYN, NY
Assets
$689K
Grants
1
Total Given
$453K
Launa Beuhler Foundation for
BROOKLYN, NY
Assets
$2K
Grants
4
Total Given
$20K
The Hilary Grace Foundation Inc
EAST AMHERST, NY
Assets
$126K
Grants
2
Total Given
$36K
Uw E J Madden Mem Open Hearts Club 10-214880
NEW YORK, NY
Assets
$1.3M
Grants
1
Total Given
$307K
Hindy's Foundation
BROOKLYN, NY
Assets
$142K
Grants
8
Total Given
$225K
Jeanne & Thomas Hardy Family Foundation
NEW YORK, NY
Assets
$3K
Grants
3
Total Given
$3K
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with Families and Friends Supporting Cystic on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities
Go from researching Families and Friends Supporting Cystic to a real strategy.