Families and Friends Supporting Cystic
FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE, INC. IS AN ORGANIZATION COMMITTED TO ENHANCING THE QUALITY OF LIFE OF CYSTIC FIBROSIS PATIENTS WHILE THEY AWAIT A CURE. THE ORGANIZATION ACCOMPLISHES THIS BY SUPPORTING AND ENDEAVORING TO IMPROVE THE SPECIAL PROGRAMS AVAILABLE FOR PATIENTS.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$1.9M
-5.6% YoY
Annual Giving
$250K
+0.0% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$250K
+0.0% YoY
About Families and Friends Supporting Cystic
Based on IRS filings
Families and Friends Supporting Cystic is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. IRS filing data is available from 2022 through 2025. As of 2025, the organization holds $1.9M in total assets. In 2025, it awarded 1 grants totaling $250K. Net investment income was $64K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $1,947,402 | $2,062,361 | $1,901,654 |
| Revenue | $194,150 | $497,707 | $817,705 |
| Expenses | $327,957 | $354,917 | $755,393 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $64,169 | $15,320 | $37,229 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2025
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| GWEN M ENGELHARD DDS | PRESIDENT | — | — |
| JILL DALTON | CHIEF FINANCIAL OFFICER | — | — |
| JOHN Z JACOBY | PRESIDENT EMERITUS/SECRETA | — | — |
| MARNEE MCCARTHY | ASSISTANT SECRETARY | — | — |
| KAITLYN CHENEY | DIRECTOR | — | — |
| ROBERT M HUTCHINSON | DIRECTOR | — | — |
| SEAN MCCOOE | DIRECTOR | — | — |
| JUDY NANCE | DIRECTOR | — | — |
| LUMI CASTLEN | DIRECTOR | — | — |
| MELISSA ARGENIO | DIRECTOR | — | — |
| DAVID SHEPHERD | DIRECTOR | — | — |
| THOMAS G LEAHY | VICE PRESIDENT | — | — |
| ROSE MARIE MANGER | DIRECTOR | — | — |
| MELISSA SMITH | DIRECTOR | — | — |
| LISA TROYANO-ASCOLESE | DIRECTOR | — | — |
Subject Areas
Focus areas based on grantmaking activity
Related Funders
Similar funders by location and focus area
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Jeanne & Thomas Hardy Family Foundation
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Ramsleg Foundation
BRIGHTWATERS, NY
Assets
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Total Given
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Druckenmiller Foundation
NEW YORK, NY
Assets
$1.8B
Grants
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Total Given
$135.7M
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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